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Author Topic: So far so good...  (Read 4740 times)

New girl

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So far so good...
« on: September 30, 2011, 05:00:00 pm »
I had surgery with Daniel Lee and Fred Barker at MGH on this past Tuesday.  Incredible surgeons! and staff! I got to come home yesterday since I did not have any dizziness or nausea or other complications.  The tumor was completely removed, no facial paralysis and my hearing was preserved.  I couldn't have hoped for a better outcome.  I am very thankful.  Tylenol for pain and steroids for swelling.  If anyone else is going to MGH the staff was great.  They just moved the whole service to a new building so you get a nice quiet room to yourself for recovery.  Hopefully things continue to go well over the next few weeks.  Thanks to all the forum support!!  ;D ;D ;D  If anyone has MGH/MEEI questions dont hestitate to PM me.
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9mmx14mmx9mm
Diagnosed 6/1/2011
Retrosigmoid Surgery 9/27/2011
Daniel Lee (MEEI) & Fred Barker (MGH) - Exceptional Surgeons

CHD63

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Re: So far so good...
« Reply #1 on: September 30, 2011, 05:17:57 pm »
Wonderful news!!!  Congratulations.  Prayers continue for an equally amazing recovery!!

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

DHJ

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Re: So far so good...
« Reply #2 on: October 01, 2011, 08:22:23 am »
Awesome. This news makes me very happy. God Bless.  Dave J
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3yr wait and watch on left sided 2.9cm AN is over surgery 11/4/2011 Mckenna/Barker at MGH one year MRI 11/12/2012 all clear

Jim Scott

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Re: So far so good...
« Reply #3 on: October 01, 2011, 11:13:10 am »
New girl ~

Wow!  Congratulations on your fantastic AN surgery outcome!  I'm delighted to learn about these positive conclusions, which happen more often than we realize, so thanks for sharing yours.  Does this mean that you'll be able to attend the October 16th ANA discussion forum brunch in Worcester?  We would love to meet you and hear about your experience at MGH first-hand.  Please consider attending, if you're up to it.  Thanks.   :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Rivergirl

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Re: So far so good...
« Reply #4 on: October 01, 2011, 06:49:03 pm »
Glad your surgery went so well.  I had mine at MGH and was in the old wing but I could see them working on the new, it must have been pretty nice.  You are very lucky to still have your hearing, one of the few, treasure that.  I am amazed you posted so quickly and feel so well.....congrats and keep up the good recovery work.
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Diagnosed 6/2008
Right AN 2cmx8x9
Sub-Occipital at Mass General with Martusa and McKenna on 5/31/11
Right SSD, very little taste
I think I will make it!

New girl

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Re: So far so good...
« Reply #5 on: October 08, 2011, 04:53:21 pm »
Thanks for all the posts!  I definately appreciate my outcome.  ;D
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9mmx14mmx9mm
Diagnosed 6/1/2011
Retrosigmoid Surgery 9/27/2011
Daniel Lee (MEEI) & Fred Barker (MGH) - Exceptional Surgeons

HeidiC

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Re: So far so good...
« Reply #6 on: October 19, 2011, 04:21:02 pm »
Glad you are doing so well!

~Heidi
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Diagnosed 6-24-11 left side AN 3mm x 3mm
33 years old at time of diagnosis
Mid Fossia surgery 10-06-2011
with Drs Adunka and Ewend at UNC.

DHJ

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Re: So far so good...
« Reply #7 on: August 20, 2012, 08:43:16 pm »
    I can't believe that it has been almost a year since your surgery. Fill us in on how your  one year follow up visit at MEEI goes.Here's wishing So Far So Good for you forever.
    I will be at MGH Neurology Wed. and expect to get off of blood thinners. Everything else has improved nicely.         Peace Dave J
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3yr wait and watch on left sided 2.9cm AN is over surgery 11/4/2011 Mckenna/Barker at MGH one year MRI 11/12/2012 all clear

It is what it is

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Re: So far so good...
« Reply #8 on: August 31, 2012, 09:27:08 am »
Congratulations!  Isn't it great to be on the other side!!!  :)

Karen
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.7cm, left side AN , Tinnitus, Hearing preserved, Middle Fossa 8/1/12 at HEI, Drs Friedman and Schwartz, Sharing your story is extremely helpful to me.

skipg

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Re: So far so good...
« Reply #9 on: September 01, 2012, 06:05:54 am »
Congratulations and thanks for the encouraging and good report.
Skip
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Self diagnosed 11/17/2010 (love the internet)
MRI 12/2010 Official diagnosis 1/3/2011 RT AN 7x6x4mm's
MRI 6/17/2011 no change still 7X6X4
MRI 7/20/2012 growth spurt to 14mm
Aug 8th consult and decided on Proton Therapy
Proton Therapy @ Hampton Proton Institute,       done on 11/20/12
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