Numbness post op

[mindyandy]

Has anyone who's had numbness post op ex: facial numbness lip tongueetc. Had it almost disappear a few months post op then reappear but not as intense? I was very numb post op because of my trigeminal nerve. As months went by the numbness was about gone and now it's back but not as intense. Anyone?

[mk]

Hi Mindy,

something similar happened to me. I had numbness pre-op (this was actually my presenting symptom, leading to the AN discovery), but no trigeminal neuralgia. It went away  as soon as I woke up after surgery. Then, after about a month it appeared again - it progressed rapidly within a couple of days and it was quite intense.  After about a month, it gradually disappeared and I have never had any problems again. My surgeon said that fluctuations in sensory nerves are not uncommon post-op. Your timeline though seems a bit different than mine, but you also had more intense trigeminal symptoms. I hope the numbness will go away soon, but I would check this out with Dr. Friedman.

Marianna

[mindyandy]

Marianna
Thank you for your help. I know not many people have trigeminal involvement like we do. I feel like an even more rare breed since I had CK, trigeminal involvement, surgery, and still have my AN. I do have great hearing still. I guess that is a plus. I know nerves take a long time to heal. I emailed Dr. Friedman and he said its likely the healing process and residual effects of radiation. Keep an eye on it. He was going to include Dr. Schwartz also. I am sending him my MRI from a few weeks ago so he has it to look at.
I will just ride it out to see.

Mindy