eyelid weight removal?

[AmberWI]

Hi,
I don't actually have AN, but I had a parotidectomy that severed my facial nerve.  I had a nerve graft right away, but it has been a long 15 months.  I had a weight put in my eyelid last November.  I have found a lot of very useful information on the "Facial Issues" part of this website. 

Because of the nerve graft, I have movement in my face - but also synkinesis and eye issues.  I do blink some, but my eye is still very problematic (lots of drops, ointments, glasses, and patches!)  My facial retraining therapist believes that I can have the eyelid weight taken out.  However, my surgeon is wary of that since she doesn't know of anything else that can be done to help the eye issues.  I am wondering if anyone has had the weight out and had good or bad experiences they are willing to share.  I wouldn't want the weight taken out and want it back in again!  The weight is not awful, but I would prefer to have it out if it isn't needed anymore.  Thanks.
Amber

[nancyann]

Hi Amber: I would listen to the surgeon & not be so quick to remove the weight. I will never be able to remove my weight due to permanent facial paralysis, but removal is possible & should be based on your ability to fully blink.
I would think (for me), the problem would also be when you lay down to sleep, that your eye is able to remain fully closed to protect the cornea during sleep.
Always good thoughts, Nancy

[saralynn143]

I would weigh the opinion of your surgeon over that of the therapist. My surgeon told me that I would be begging him to remove my weight much sooner than he would agree to do it. (So far I don't want it out.) If you take it out too soon, you will be going back for another one (I don't think they can put the same one in again once removed) and that will mean two extra surgeries.

Patience, grasshopper.

Best,
Sara