pituitary gland issues from acoustic neuroma

[mrmel]

Hello everyone
 Its been a while, I need some input from anyone that might have experienced something similar to what I am going through right now. I had my surgery 17 years ago and of course I have struggled with fatigue off and on ever since. However recently something new has developed. Over the last month I have become severely fatigued and It is effecting my work and quality of life. I had a colonoscopy 2 weeks ago and the nurse was taking my temperature and it was 96.2 she asked me why? I could not answer her. Since then I have been really fatigued to the point I can barely function. I had a lot of lab work done and my testosterone was very low at 170. My internist wants to give me injections but he said he wanted to check my pituitary gland first to be sure it is functioning ok. I did not realize that the pituitary gland controls body temperature. So I have been checking mine since I found that out and since the nurse asked me why my temp was so low. I have been ranging mostly around 95.5 when I feel very weak, tired and sleepy. Yesterday I had an episode where at 930 in the morning at a meeting at work I could not stay awake and passed out in the chair in front of 5 people. later in the day when I was home I was again unable to stay awake, I took my temperature and it was 94.5, it eventually came up to 96.4 but never gets above that. I called my doctor today and he is ordering an mri to see if there is something wrong with the pituitary gland in the brain stem. One of my concerns is did the 14 hour surgery from 17 years ago damage the pituitary gland or is there regrowth effecting the pituitary, I wont know until I get the mri next week, but I am curious if anyone has had any similar experience?
                      Mel Dening

[Kathleen_Mc]

I always feel very cold, to touch my feet they are like ice but the rest of me feels warm to touch and my temp. is always OK but I have often wondered about the pituitary issue myself, have had MRI but everything is apparently OK. There has been times when they find my serum Cortisol level to be elevated as well? again makes me wonder about that old brain stem and how it's doing in there.

[kraynok2]

Hi,
  In November it will be 4 years since I had my surgery. It was 7 hours. I have had no problems. But when I went for my post surgery MRI, they found a parotid gland tumor on the opposite side. It was from a schwanoma also. I had to have surgery on that side. I did not have symptoms and if it would not have been for the AN, I would not have known it was there.  I chill easily, have always been that way. My husband thinks something is wrong because I can be cold when he is hot. I told him I was raised in a house with grandparents and our heat was kept on 80 degrees while he was raised in a freezing cold house. Please see specialists. You know when something is not right with you. I have done well these past 4 years. I think my good side had taken over long before I knew I had a tumor. I tried for 5 years to get my ear doctor to do a test because I was losing hearing in one ear and had tinnitus in that year. I finally got another opinion, thank goodness. Don't give up. Get other opinions and keep trying.
Sandy, WV

[Cheryl R]

Mel,  I think the pituitary gland the and AN have no relation to each other.        You may have a pituitary issue and would need to see an endocrinologist.        There are other symptoms that one also may or may not have with a pituitary tumor.             The fatigue could also come from other issues.        I would think that thyroid,iron levels,blood count could also affect you possibly in the same way.        Plus also the cortisol level.           The low temp could be from several reasons.       You do need to be thoroughly checked for the reason for why you are not feeling good.         Keep us posted how it goes and hope you get to be feeling better soon.                Cheryl R

[Cheryl R]

Kathleen,   My husband has the super cold feet most of the time.   The rest of him is warm.      I have wondered about a circulation problem with him but he has good pedal pulses.    So who knows.         Have you had the cortisol level checked again?       Can even stress elevate that?                  Cheryl R

[Kathleen_Mc]

Cheryl: Yes stress can cause the cortisole level to be elevated and that's what Ialways figured, haven't rechecked it cause I'm always stressed!   My cold feet could be from other issue's I have (spinal stenosis and low blood pressure which both will cause it) so I haven't stressed about it, last MRI was fine. Thanks

[Survival Nate]

I had a 5.05cm AN removed in 05 and just got a MRI after a number of years without one, they wanted to check my PG and they checked the AN to, and I got a 2mm on the PG and 1.5cm regrowth AN. I dont think they have anything in common but there it its