Leg weakness post surgery

[roxannleeper]

Hello everyone I am two years post surgery and I am still having difficulty

When I bend my head over my nose runs, my right eye waters on Ana side.
I have lost all hearing on my right side and my balance is off.  I cannot walk and have my head turned because I fall, looking up makes me fall.  Reading everyone's posts it sounds pretty normal.

However has anyone experienced with your legs becoming like rubber and you can't stand well, or sometimes you need to concentrate to get your leg to move AN side, or have the three middle toes go numb on a regular basis on AN side?

Sometimes it feels like my brain is being pulled through a jagged hole paired with deep ear pain.

Thank you for sharing your experiences. It helps to make me feel normal

[JiroJiro]

Hello Roxann,

Sorry to hear that you are having difficulties 2 years on.

I have not heard about leg weakness like you describe but have had the nose run thing.
Is it a CSF leak? Mine was and I had to have another operation to fix it.

I know it's been 2 years post op but I understand that you can get a leak many months after the surgery - there are Forum topics which cover that issue.

I hope that answers will be found for your leg and ear pain.

All the best. 

[LakeErie]

Roxann, You make no mention of contacting a physician about your symptoms. The runny nose on bending over is a classic symptom of CSF leak. CSF leaks can be serious. The other symptoms you mention are not, in my opinion, " pretty normal " for people 2 years out from surgery. You need an evaluation from a medical professional to determine the cause of your symptoms and what treatments may help you. Good luck.

[Cheryl R]

Roxann, one can have a runny nose  easily past AN surgery.      My surgeons definition of a leak is that the fluid from the nose has to drip,drip drip like a faucet when you bend over and stay bent over for a time.        I have runny nose on one side when I eat and on the other side when get too warm and am active.  I am NF2 so had surgery on both sides.                  The other symptoms are possibly not AN and could be from several causes.   I would see a dr about those.  Can you even talk to your surgeon also?         He also could give you more info about the runny nose.                  Cheryl R

[nftwoed]

Hi Roxanne;
   Must say your recovery experience is a tad slow, but not unusual.
   Yes; As per others, a potential CSF leak, but not necessarily. I've gained sinus drainage and a teary eye since surgery.
   Re, the rubber legged feeling, my guess is that could be related to the vestibular dysfunction, but when you add the toe issue, I think of PN, or peripheral neuropathy.
   Best to contact your Neuro about the problems or an Internal Medicine Specialist. Maybe a neurologist ...
   Re, the "ice pick ear pain", I think it will be found as unrelated to the AN and of unknown etiology. I've read reports of others commenting on same.

[roxannleeper]

Thanks everyone for answering my post.

I had called my neuro surgeon at three months at four months and at six months, basically told I had major surgery and I should suck it up.

I have an appt on June 18

Take care everyone