Can't sleep, need to use the BR every 5 min, upset, unsettled. OMG; What I wouldn't give for a PCP who actually listens to my feelings and can interface other health problems with NF-2? She's not living the problems. I have been for years and still am.
High BP?, pills, no vestibular system, deafness. No one slows down. No one will write down what they're saying. They just stare, or repeat the same garble again like robots.
Dizzy and more pills prescribed. I complain; "you'll get used to it", says Doc. Shucks, kill ya with my car first, driving to the appts. Dizzier than ... All I want to do is lie down. Like the Doors song; "There's a driver on the road, his head is swimmin like a toad." Funny, I don't have high blood pressure outside medical facilities. "We want a normal reading here, in office", says doc. Impossible!
More thrush too. "Oh; We can't give you more fluconazole". Then let me die in peace.. I hate the medical establishment unless they have morphine and someone to remove ANs, set bones, etc.
Drs; One can't live with them at times and one can't live w/o them at times. Well; One day the living in this body will be done and all will be forgotten.
One time in trying to explain chronic dizziness even to my Neurotologist, I finally had to say; "Dr, you have to live it to know it." Dumb **** just sat there and stared at me! I was sure he was thinking about lunch after my 3 hr. wait in the waiting room to see him.
Sometimes life just sucks!
