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Author Topic: New tumour - not sure what  (Read 4960 times)

santel

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New tumour - not sure what
« on: June 15, 2014, 01:03:49 am »
I'm returning after a few years of forgetting I had NF2 - my MRI this week shows tumour growth at a sight on the fat graft from translab surgery in 2006. 
New growth is from what was previously identified as 'plaque' and is 21mm x 6mm x 5mm, abutting the trigeminal nerve but doesn't seem to be attached to any nerve.
When my 1st AN was removed NF2 wasn't considered but histology showed I had it and a 2nd AN on the other side started soon after.  All steady until now.
2nd AN has increased in size from 2mm to 5mm.
Can anyone hazard a guess as to what type of tumour this would be that is growing on the 'margin of the fat graft'?

I've yet to talk with my Dr.
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santel
2006 [L] ac removed translab
2010 [R] ac diagnosed - NF2
2014 [L] regrowth diagnosed

Susan A

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Re: New tumour - not sure what
« Reply #1 on: September 09, 2014, 06:23:43 am »
Santel,
did you ever get an answer from your doctor about this new tumor?
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2011 8 x 7 mm AN, & 20 x 22 mm M found, both on the left. Mosaic NF2 diagnosed. Some hearing loss
2014 hearing 30% on left, now using hearing aid (HA)
2015 Now have CROS HA - no longer hear enough for HA to be useful in AN ear
2016 Use an FM system on occasion at work to supplement HA
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