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Author Topic: SURGERY DATE NOV 20 AT HOUSE  (Read 15297 times)

clere

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Re: SURGERY DATE NOV 20 AT HOUSE
« Reply #15 on: November 15, 2013, 09:21:59 pm »
You only have a few days left to wait!!  We'll all be sending good thoughts and prayers your way on the 20th.  Thank you so much for taking the time to share information with me through our PMs.  I still haven't been able to take the step of making the appointment but I'm working on it!! 
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v357139

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Re: SURGERY DATE NOV 20 AT HOUSE
« Reply #16 on: November 26, 2013, 09:34:15 pm »
Very good outcome.  Mild smile issue they say will go away.  99.5% tumor removal.  Biggest issue is balance, but today was a big improvement.  Schwartz called it a slam dunk.  Thank God and all from this site that I am now on the other side.
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Dx 2.6 cm Nov 2012, 35% hearing loss.  Grew to 3.5 cm Oct 2013.  Pre-op total hearing loss, left side tongue numb.  Translab Nov 2013 House Clinic.  Post-op no permanent facial or other issues.  Tongue much improved.  Great result!!

TexasSprinter

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Re: SURGERY DATE NOV 20 AT HOUSE
« Reply #17 on: November 26, 2013, 09:39:53 pm »
Great news!  Now put your i-pad down and get some rest!

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rm516

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  • 'incremental improvements' everyday!
Re: SURGERY DATE NOV 20 AT HOUSE
« Reply #18 on: November 26, 2013, 11:08:23 pm »
Great outcome ! Very happy.....
You said "Balance is issue"- can you please elaborate ....(whenever safe to do)
Your response in 3-4 days is very encouraging and appreciated.
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Diagnosed AN in 2008,  3.2 cm CPA round, retrosigmoid surgery performed by Dr. M. Sisti, Columbia Pres.Hospital  NY, in Jan 2013, After surgery no major issues, Hearing retained (>50% ). However, 2 YRs post surgery MRI shows a further decrease in the size of residual AN! No GK or any therapy needed.

cindyj

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Re: SURGERY DATE NOV 20 AT HOUSE
« Reply #19 on: November 27, 2013, 09:44:55 am »
Hey, Rich!  So glad to hear from you and that all is ok!  If they say your smile will be fine, trust them on that...it will!  The balance/wonkyhead may take a some time, but it does get better.  Walk as much as you can - followed by a nice nap each time :D 

Enjoy the rest of your stay out there :)

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

mindyandy

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Re: SURGERY DATE NOV 20 AT HOUSE
« Reply #20 on: November 27, 2013, 09:47:01 am »
Very happy to hear you are now a postie  ;D
Dr. Schwartz rocks & so does all the staff at St Vincent. Take it easy.
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14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

CHD63

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Re: SURGERY DATE NOV 20 AT HOUSE
« Reply #21 on: November 27, 2013, 10:57:12 am »
Great news!!  Rest, walk, rest, walk, rest, etc.  It truly does get better!!

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

LakeErie

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Re: SURGERY DATE NOV 20 AT HOUSE
« Reply #22 on: November 27, 2013, 02:02:55 pm »
Congratulations on putting the surgery behind you. Now you can concentrate on recovery. Good luck.
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4.7 cm x 3.6 cm x 3.2 cm vestibular schwannoma
Simplified retrosigmoid @ Cleveland Clinic 10/06/2011
Rt SSD, numbness, vocal cord and swallowing problems
Vocal cord and swallowing normalized at 16 months. Numbness persists.
Regrowth 09/19/2016
GK 10/12/2016 Cleveland Clinic
facial weakness Jan 2017

clere

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Re: SURGERY DATE NOV 20 AT HOUSE
« Reply #23 on: November 27, 2013, 03:48:45 pm »
Soooo glad to hear from you and that all went well!
Been thinking about you.
Have a RELAXING Thanksgiving.

Finally made the move and scheduled my surgery at HEI mid January.
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v357139

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Re: SURGERY DATE NOV 20 AT HOUSE
« Reply #24 on: December 02, 2013, 09:14:05 pm »
Quote from: rm516 on November 26, 2013, 11:08:23 pm
Great outcome ! Very happy.....
You said "Balance is issue"- can you please elaborate ....(whenever safe to do)
Your response in 3-4 days is very encouraging and appreciated.

They cut balance nerve so the other side takes time to compensate.  First few days post op I was dizzy.  Then day 3 or 4 I could walk a little, but not much.  Now 10 days out I am walking very well.  Each person is a little different.
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Dx 2.6 cm Nov 2012, 35% hearing loss.  Grew to 3.5 cm Oct 2013.  Pre-op total hearing loss, left side tongue numb.  Translab Nov 2013 House Clinic.  Post-op no permanent facial or other issues.  Tongue much improved.  Great result!!

v357139

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Re: SURGERY DATE NOV 20 AT HOUSE
« Reply #25 on: December 02, 2013, 09:17:14 pm »
Quote from: clere on November 27, 2013, 03:48:45 pm
Soooo glad to hear from you and that all went well!
Been thinking about you.
Have a RELAXING Thanksgiving.

Finally made the move and scheduled my surgery at HEI mid January.

Great choice Clere.  From my perspective, and also people I met at Seton - hard to go wrong coming out here.
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Dx 2.6 cm Nov 2012, 35% hearing loss.  Grew to 3.5 cm Oct 2013.  Pre-op total hearing loss, left side tongue numb.  Translab Nov 2013 House Clinic.  Post-op no permanent facial or other issues.  Tongue much improved.  Great result!!

v357139

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Re: SURGERY DATE NOV 20 AT HOUSE
« Reply #26 on: December 02, 2013, 09:28:29 pm »
Quote from: cindyj on November 27, 2013, 09:44:55 am
Hey, Rich!  So glad to hear from you and that all is ok!  If they say your smile will be fine, trust them on that...it will!  The balance/wonkyhead may take a some time, but it does get better.  Walk as much as you can - followed by a nice nap each time :D 

Enjoy the rest of your stay out there :)

Cindy

That is my routine.  Walk, sleep, eat.
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Dx 2.6 cm Nov 2012, 35% hearing loss.  Grew to 3.5 cm Oct 2013.  Pre-op total hearing loss, left side tongue numb.  Translab Nov 2013 House Clinic.  Post-op no permanent facial or other issues.  Tongue much improved.  Great result!!
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