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Author Topic: Seeking input for GK treatment  (Read 3538 times)

errol karakash

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Seeking input for GK treatment
« on: November 23, 2013, 09:42:21 am »
Guys, I got a tumor that requires gumma knife treatment and looking for some advise as to which hospital and which Dr. to go to...
any advise would be appreciated..
thanks
errol.
« Last Edit: November 23, 2013, 02:52:17 pm by Jim Scott »
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Jim Scott

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Re: Seeking input for GK treatment
« Reply #1 on: November 23, 2013, 02:57:37 pm »
Hi, Errol ~

Welcome.  I'm sorry about your AN diagnosis but I hope we can help you through the doctor/facility selection process, using our member's experiences.

If you could post your geographical location it would help respondents to focus on facilities/doctors that are convenient to you or at least within reasonable traveling distance.  Thanks.

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

GM

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Re: Seeking input for GK treatment
« Reply #2 on: November 23, 2013, 05:48:11 pm »
I'm sorry that you're part of our AN club....but you couldn't have asked for a more caring and knowledgeable bunch. 

I had my AN treated by Gamma Knife at the University of Virginia, I was very satisfied with my treatment process and follow up.  It has been 10 years since my treatment and they still track my progress and read my MRI's.  I am very happy with my results.  I still have useable hearing in my AN ear, and my tumor is FINALLY starting to show signs of shrinkage.  (Praise the Lord)

Remember that results can and do vary depending on AN size, location and ....well....AN.  I wish you the best.

Gary

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Originally 1.8cm (left ear)...Swelled to 2.1 cm...and holding after GK treatment (Nov 2003)
Gamma Knife University of Virginia  http://www.medicine.virginia.edu/clinical/departments/neurosurgery/gammaknife/home-page
Note: Riverside Hospital in Newport News Virginia now has GK!!

Fender3131

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Re: Seeking input for GK treatment
« Reply #3 on: November 27, 2013, 04:24:08 pm »
Some of the Doctors/clinics I looked into are as follows:

House Clinic, Los Angeles

Standford University (Dr. Chang) - Cyber Knife

University of Pittsburgh - (Dr. Lundsford)


Good luck, and never hesitate to ask more questions and post, that's what we are here for!
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arizonajack

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Re: Seeking input for GK treatment
« Reply #4 on: November 27, 2013, 11:09:45 pm »
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3/15/18 12mm x 6mm x5mm
9/21/16 12mm x 7mm x 5mm
3/23/15 12mm x 5.5mm x 4mm
3/13/14 12mm x 6mm x 4mm
8/1/13 14mm x 5mm x 4mm (Expected)
1/22/13 12mm x 3mm (Gamma Knife)
10/10/12 11mm x 4mm x 5mm
4/4/12 9mm x 4mm x 3mm (Diagnosis)

My story at: http://www.anausa.org/smf/index.php?topic=18287.0
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