Author Topic: Meningiomas after radiation treatment for AN?  (Read 2112 times)

joanna_an

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Meningiomas after radiation treatment for AN?
« on: November 22, 2013, 01:08:49 am »
Hi all,

Still trying to decide between radiation treatment (GK or Linac) and surgery. I am 31 years old, so long-term health is important for me.
My AN is 18 x 16 x 13 mm. I do have access to two good surgeons (a neurosurgeon and an ENT surgeon). I have only hearing loss and tinnitus with a bit of tingling in my forehead.

I've seen a few posts after the radiation treatment for AN, MRI shows meningioma(s).
Is this a mere coincidence or is it likely to happen after radiation?

Joanna.
31 years old female
Left AN 18x16x13mm diagnosed on the 17th of October 2013
21mm on the 19th of February 2014
Hearing loss, tinnitus
SRT 12th March 2014

Nannybee

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Re: Meningiomas after radiation treatment for AN?
« Reply #1 on: November 22, 2013, 12:14:12 pm »
Joanna,

My meningiomas were an incidental finding on my original MRI. The doctor was looking for the AN and the MRI with contrast showed my AN PLUS 2 meningiomas, so they were present well before my SRS treatment. On my pre-treatment MRI, a tiny 3rd meningioma was noted but in retrospect my neurosurgeon thinks it was there all along but the better resolution of the second scan made that one more apparent. I also have NF2, hence the meningiomas. They were not related to my treatment and continue to be monitored. My 6 month post-treatment MRI showed no change in the meningiomas.

NB
AN 18x19 mm
3 meningiomas
NF2
AN treated with SRS April 2013
MRI Feb 2016 AN shrunk to 17 x 8 mm :)
Constant tinnitus in AN ear
Severe hearing loss AN ear

joanna_an

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Re: Meningiomas after radiation treatment for AN?
« Reply #2 on: November 22, 2013, 07:59:21 pm »

Thank you very much NB for replying and clarifying.. I feel a bit better now.
31 years old female
Left AN 18x16x13mm diagnosed on the 17th of October 2013
21mm on the 19th of February 2014
Hearing loss, tinnitus
SRT 12th March 2014