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Author Topic: 9 years post op  (Read 10451 times)

Louise UK

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9 years post op
« on: August 21, 2018, 12:49:53 pm »
Hi

Has anyone experienced headaches/pain behind eye, that have started 9 years post op?

Louise
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Patti

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Re: 9 years post op
« Reply #1 on: August 22, 2018, 06:30:54 am »
Yes. But I can't remember when they started. I think that is from irritation to the tri-geminal nerve.  I still get it.
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4 cm AN removed 12/2000
subsequent brain swelling
removal of part of cerebellum
face, scalp,tongue numbness and partial paralysis
no corneal sensation and no tears-frequent eye issues
cognitive issues
Regrowth (3.1 x ..86 cm) treated by SRS on November 6, 2015

Louise UK

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Re: 9 years post op
« Reply #2 on: August 23, 2018, 11:41:38 am »
Thanks for the reply. Did you ever mention it to your consultant?
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v357139

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Re: 9 years post op
« Reply #3 on: August 23, 2018, 09:12:43 pm »
Louise,
You should definitely check with your surgeons.  Perhaps they can refer you to a pain specialist, or have some other suggestion.  You never know until you check with your doctors.
Rich
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Dx 2.6 cm Nov 2012, 35% hearing loss.  Grew to 3.5 cm Oct 2013.  Pre-op total hearing loss, left side tongue numb.  Translab Nov 2013 House Clinic.  Post-op no permanent facial or other issues.  Tongue much improved.  Great result!!

Louise UK

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Re: 9 years post op
« Reply #4 on: August 24, 2018, 02:30:29 am »
Hi Rich

Yes, I've just had an mri to monitor a cyst that's appeared under my residual tumour. I don't know if that could be causing the headaches. My consultant said she will phone me with the results, so I'll mention it to her then.

Thanks for the reply.
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