Hi Everyone,
Wanted to give update for year four. The booger continues to shrink and I am grateful. Always stressful at MRI time, but I wasn't as worried this year as last. I had swelling which continued at 2 year check up, so I was nervous at year 3 (last year). As my signature shows, it did shrink at year 3. Now at yr. 4 it's smaller than diagnosis (1.6 x 1.1 x 1.1). I continue to have infrequent episodes of dizziness sometimes vomiting - often brought on in a store. I had these prior to diagnosis and Dr. Chang said symptoms prior to diagnosis may continue so I don't get too upset. Up until about 6 months ago, I would periodically get hard stabbing pains in my ear that sometimes woke me up. I went through some bad "wonky head" for ~18 months starting at 4 months post CK that I thought would never leave. Slowly but surely this got better. I also had 2-3 bad vertigo episodes that put me down in the early days for which I took steroids. Had hemifacial spasms for 6 months. Now I'm left with ongoing tinnitus, which I'm able to ignore most days, and I'm a little "off balance" some days. Overall I'm doing well, and am very grateful and would do radiosurgery again in a heartbeat (CK or GK). I did not follow the "usual" pattern for shrinkage (if there is such a thing), and I hope my story can help those who are trying to be patient waiting for results after having RS. I will always be grateful for this board, especially those of you who continue to do this work. Please don't hesitate to PM me if I can be of help. Take Care. Mona
