4cm "Timmy the Tumor" is gone!

[Larry]

Angela,

left field, but have you tried botox?


laz

[Angela]

Sorry for the delay, haven't logged on in a long time.

No haven't tried Botox.  My physical therapist (fellow-AN'er) needed it for her AN side which had been over-stimulated and the muscles wouldn't relax, so she was actually in pain.

[nancyann]

Hi Angela:

Glad you got back to the forum;  we haven't met, I'm relatively new to the AN crew.
Looks like we're in the same boat re: facial paralysis.
I just had my 6 month EMG - it DID show 10-15% nerve regeneration.
I have been going to acupuncture also, 2x/week since October,
I know the docs think it's B.S., but I can't help wondering if it did have something to do with it.
The acupuncturist also uses a Luminex Laser after acup.
My facial nerve was CUT during surgery, so the docs didn't think there was a chance of regeneration.
I still can't move my right side, & I just got back from the eye surgeon who thinks I may have an
allergy to the gold weight in my upper eyelid (it's very rare but does happen).
Now I have to go to an allergist & be tested for a gold allergy.

Are you having any facial movement yet on your AN side ??     Take care, Nancy

[Soundy]

a couple things in this post attracted me ...

First off is naming your tumor...

Mines names is Bennie... Bennie the benign tumor
some relatives don't think I take things as serious as I should
because I named it , but I told them it was mine and I would name it if I wanted to

Second is the hormone talk... I had hormone problems that had me bleeding up to 20
days out of the month and also have lupus ... had a hysterectomy in March after about 3 years
of this... the last year was the worst... and Bennie who had just sat there took off growing
at a super high rate at the same time I had the big hormone surges and falls...my neuro
surgeon has thought that the hormones played a part in the growth spurt...

As for the naming , my sense of humor dealing with the AN and more so the lupus is
what keeps me going many days... if I didn't laugh I would be a blubbering idiot sitting in
a corner crying... and my life is good between all the problems

[GM]

Soundy,

I think your approach is excellent.  All of us try to keep a good sense of humor because if we didn't we just about go batty 

Name your tumor, draw a face to the name and make a circle with a line through it...what ever it takes!  It's healthy, therapeutic, and it just plain 'ol makes you feel better.  Press on!

Gary

[okiesandy]

Soundy,

My tumor is Ivan the Terrible Tumor.  Ivan was zapped by CK and I like to envision him in his little death throws. Little x's on his eyes like in the cartoons.  1 year MRI he was smaller than at treatment time. July 10 will be 18 months and I want to erect a tombsone for him. RIP Ivan.

Sometimes it seems like there is nothing to laugh about in this journey. There will be. You keep on asking those questions on Cyberknife Support. They answer. Get on with yor research and get Bennie treated. Then you can concetrate on the Lupus. Stress, stress, stress... not good for you.

I see you are from Tennessee. One of my favorite states and places to go. Was married to a man from Tennessee. I don't hold it against the state.

Sandy