Author Topic: Cancerous Brain Tumor support groups  (Read 5792 times)

Patti UT

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Cancerous Brain Tumor support groups
« on: October 15, 2006, 06:54:01 pm »
Hi All,

  My uncle has was diagnosed and quickly operated on last March for a very aggressive form of malignant brain tumor/cancer. They removed what they could, have done the radiation, and a very differenct form of chemo than I have ever hear of, and given him a short time line.  He is still in the angry phase, he's only 58 and was just about to retire
 If anyone knows of a good support forum like this one, please let me know. I think it would be good for him to talk with others going through what he is.

Thanks

Patti UT yootee
2cm Rt side  middle fossa  at University of Utah 9/29/04.
rt side deafness, dry eye, no taste, balance & congintive issues, headaches galore
7/9/09 diganosed with recurrent AN. Translab Jan 13 2010  Happy New Year

Boppie

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Re: Cancerous Brain Tumor support groups
« Reply #1 on: October 15, 2006, 07:27:21 pm »
Patti, google MD Anderson Cancer center in Houston.  I have lost two friends to brain cancers, one primary and one from testicular cancer.  Anderson is a wonderful facility and probably has support group information online.

Patti UT

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Re: Cancerous Brain Tumor support groups
« Reply #2 on: October 16, 2006, 12:21:01 pm »
Thanks Boppie, I'll take a look
2cm Rt side  middle fossa  at University of Utah 9/29/04.
rt side deafness, dry eye, no taste, balance & congintive issues, headaches galore
7/9/09 diganosed with recurrent AN. Translab Jan 13 2010  Happy New Year

staypoz

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Re: Cancerous Brain Tumor support groups
« Reply #3 on: October 16, 2006, 12:34:17 pm »
There is also the National Brain Tumor Foundation.  Might want to check out their resources.

staypoz

Gennysmom

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Re: Cancerous Brain Tumor support groups
« Reply #4 on: October 16, 2006, 03:26:18 pm »
and don't forget ABTA...not sure if they have a forum, but they mostly focus on cancerous brain tumors. 
3.1cm x 2.0cm x 2.1cm rt AN Translab 7/5/06
CSF leak 7/17/06 fixed by 8 day lumbar drain
Dr. Backous, Virgina Mason Seattle
12/26/07 started wearing TransEar