Author Topic: Symptoms Changing  (Read 2883 times)

megmas

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Symptoms Changing
« on: September 01, 2015, 07:01:47 am »
Hi Everyone,

I was diagnosed with 1.1 cm AN in February 2015.  I am on the wait and watch status with Dr. Tamargo at Johns Hopkins.  I am due for my next MRI in November.

I just went in for another hearing test last week, as I want to look into getting a hearing aid.  My word recognition with masking went from 82% in January down to 56%.  I'm also noticing a fullness in my ear which wasn't present before.

Could the above indicate that the AN is growing?  My ENT said not necessarily...

Thanks!!

arizonajack

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Re: Symptoms Changing
« Reply #1 on: September 01, 2015, 09:30:53 am »
True. Might not be growing but probably is. Even if it isn't the damage to the nerve continues.

Mine grew 20% in 6 months between diagnosis and 2d MRI but my hearing on the AN side was already gone by the time I was diagnosed.

Plenty of information on hearing devices in the forum on hearing issues:

http://www.anausa.org/smf/index.php?board=17.0

3/15/18 12mm x 6mm x5mm
9/21/16 12mm x 7mm x 5mm
3/23/15 12mm x 5.5mm x 4mm
3/13/14 12mm x 6mm x 4mm
8/1/13 14mm x 5mm x 4mm (Expected)
1/22/13 12mm x 3mm (Gamma Knife)
10/10/12 11mm x 4mm x 5mm
4/4/12 9mm x 4mm x 3mm (Diagnosis)

My story at: http://www.anausa.org/smf/index.php?topic=18287.0

ANGuy

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Re: Symptoms Changing
« Reply #2 on: September 01, 2015, 01:39:15 pm »


My ENT said not necessarily...

Thanks!!

Your ENT is correct.  Variable symptoms and tumor growth need not be related.  My symptoms vary and my tumor hasn't grown.  The only way to know if your tumor has grown is to get an MRI.  You'll find out in November.
Diagnosed June 2014 1cm AN at 47 years of age.  Had fluctuating symptoms since 2006.    6 mos MRI (Dec 2014) showed no growth, MRI  in July 2015 showed no growth.  MRI Jan 2016 showed no growth.  MRI Aug 2016 showed no growth.  I'm gonna ride the WW train as long as I can.