Thanks for your reply. I do remember your pre-op concerns and our exchanges. I could not cooperate completely with you as I had a colon surgery pending, that was Sept 2013. ( I did have stage 1 colon cancer and am waiting for 5 years clear of disease, just 3 more to go, to be released from follow up care.) I am glad you made the right decision and did well.
As for waiting on this development, I see no need for treatment on a tumor remnant that is not larger in size. If that fact changes, I will get a couple opinions in addition to what the Clinic tells me. Cleveland Clinic is one of three teaching hospitals in the country offering training in the Perfexion GK so they are reputable. Pittsburgh is close by so UPMC and Dr Lundsford is an option for an opinion and University Hospitals in Cleveland has a long term Acoustic Neuroma Treatment Program staffed by doctors trained at House and Barrow, they include CK as a treatment. Good luck