Author Topic: Please recommend good team (surgeon) in New York or around  (Read 6136 times)

Formyfriend

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Please recommend good team (surgeon) in New York or around
« on: December 04, 2015, 05:06:13 pm »
Please recommend good team (surgeon) in New York or around.
My friend recently was diagnosed with AN (2.2 cm), her regular doctor advised her to do surgery with to Dr. Philip Stieng , but I can't find any information about him. PLease help !!!

Thanks in advance,
Elena

NYLady

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Re: Please recommend good team (surgeon) in New York or around
« Reply #1 on: December 06, 2015, 08:43:28 am »
I received Gamma Knife treatment by Dr. John Golfinos and Dr. Stephen Rush.  I was referred by Dr. J. Thomas Roland.  NYU also has Dr. Kondziolka on their staff.  I think you would be well served to schedule an appointment at NYU.  They were wonderful.

NYL

NYLady

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Re: Please recommend good team (surgeon) in New York or around
« Reply #2 on: December 06, 2015, 08:45:27 am »
By the way Elena, Dr. Golfinos also does many, many surgeries for this condition   Dr. Roland as well.  Truly they are fabulous doctors and amazing people.

mandy721

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Re: Please recommend good team (surgeon) in New York or around
« Reply #3 on: December 12, 2015, 10:18:21 pm »
Drs Roland and Golfinos get excellent reports from their patients, as does Dr. Michael Sisti at Columbia Presbyterian, who  does both GK and microsurgery, and Dr. Selesnick at Weill Cornell partnered with Philip Gutin at Memorial Sloan Kettering. 
Husband diagnosed 5/30/09 with 3.2cm right AN
Surgery at  Columbia Presbyterian 8/4/09
Platinum eye weight implant - 8/17/09
17 days in hospital and rehab
SSD, facial weakness, some tinnitus, headaches , balance and eye problems

Formyfriend

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Re: Please recommend good team (surgeon) in New York or around
« Reply #4 on: December 14, 2015, 10:05:17 am »
THANK YOU BOTH! Will try to convince my friend to see these doctors.

all best,
Elena

Smedina

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Re: Please recommend good team (surgeon) in New York or around
« Reply #5 on: December 14, 2015, 04:48:55 pm »
Elena,

I'm a patient of Dr. Stieg, and I have recommended him to family without reservation as well.

I've also seen Dr. Selesnick, and had a pre op consult with another doctor on your list. Regardless of the direction your friend takes, she is in very capable hands with any of the names on the list.

Best of luck!
Dx 10/20/2011- 4.5cm
Retrosigmoid- Weill Cornell- 11/15/2011- hypervascular tumor
Translab- 11/30/2011
Multiple complications- CSF leak, DVT, cerebellar injury
Facial paralysis- 12-7 Nerve transfer 3/12
SSD—BAHA- 2/14
Ongoing reconstruction & rehab

Eddie

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Re: Please recommend good team (surgeon) in New York or around
« Reply #6 on: December 15, 2015, 06:37:53 pm »
Hi Elena,

I just had my AN removed last tuesday(12/8/15) at new york pesteryian hospital(columbia university) with dr michael sisti. He did an amazing job ans im recovering very quickly. Highly recommended, my AN was about the same size or slightly larger and he was able to remove 100% of it and save all my nerves. Please feel free to Pm me if you have any additional questions!
-July 2015 - Woke up with congested left ear and lasted about 2 weeks - then came Tinnitus
-9/16/15 - ENT doctor diagnosed with Tinnitus
-10/2/15 - MRI Scan reveals 2.4 X 2.4 x 2.2 cm AN
-12/8/15 - Surgery NYP Dr. Michael Sisti
-12/9/15 - 100% tumor removal all nerves saved :D

UpstateNY

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Re: Please recommend good team (surgeon) in New York or around
« Reply #7 on: December 22, 2015, 07:03:35 pm »
Hi Eddie,

Glad to hear you are doing well.

What method was used in your surgery?  How is your balance post surgery?

I am debating translab vs. middle fossa for my tumor (if I take the microsurgical approach), but am scared of the possible balance issues that can come with translab.  I have only lost 20% of my balance in the AN ear since mine is smaller than yours.
Apr 2015: Diagnosed with 8mm AN at age 49
Oct 2015: MRI showed growth to 12mm
Feb 2016: Completely removed via Transcochlear approach at House Clinic; no facial/eye issues, balance improved
Aug 2016: MRI shows no regrowth/residual tumor

My story:  http://www.anausa.org/smf/index.php?topic=22581.0

Formyfriend

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Re: Please recommend good team (surgeon) in New York or around
« Reply #8 on: December 23, 2015, 08:43:43 am »
Thank you All!
Will give all this info to my friend , hope she will choose right Doctor.

Dear Eddie, I'm glad to hear you are doing well,  and wish you full recovery as soon as possible.

Happy Holidays and Healthy New Year to All of you!

Cheers, Elena