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Author Topic: Hearing - Does it ever come back or get better?  (Read 5681 times)

Eddie

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Hearing - Does it ever come back or get better?
« on: February 05, 2016, 09:11:21 am »

I read people's experiences with facial paralysis and how some people are able to have recover or get better over time especially with acupuncture or facial exercises. I'm unable to find anyone with any experiences with hearing restoration or progress. Has anyone ever had their hearing restored/improve over time? My Dr. said all my nerves were saved, however; i've lost 50% hearing in my AN ear, will this ever improve?
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-July 2015 - Woke up with congested left ear and lasted about 2 weeks - then came Tinnitus
-9/16/15 - ENT doctor diagnosed with Tinnitus
-10/2/15 - MRI Scan reveals 2.4 X 2.4 x 2.2 cm AN
-12/8/15 - Surgery NYP Dr. Michael Sisti
-12/9/15 - 100% tumor removal all nerves saved :D

arizonajack

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Re: Hearing - Does it ever come back or get better?
« Reply #1 on: February 05, 2016, 12:07:21 pm »
That all your nerves were saved only means that they weren't sliced or damaged during the surgery. However, that you lost some hearing means that the AN, itself, damaged the acoustic nerve and the odds of that nerve recovering are slim. If I were a betting man I'd bet that you were destined to lose more of the hearing on the AN side in the future. I think there are one or two members who have experienced somewhat favorable hearing retention. Watch this space for their responses.

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3/15/18 12mm x 6mm x5mm
9/21/16 12mm x 7mm x 5mm
3/23/15 12mm x 5.5mm x 4mm
3/13/14 12mm x 6mm x 4mm
8/1/13 14mm x 5mm x 4mm (Expected)
1/22/13 12mm x 3mm (Gamma Knife)
10/10/12 11mm x 4mm x 5mm
4/4/12 9mm x 4mm x 3mm (Diagnosis)

My story at: http://www.anausa.org/smf/index.php?topic=18287.0

SueLL

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Re: Hearing - Does it ever come back or get better?
« Reply #2 on: February 09, 2016, 08:21:28 pm »
Hi Eddie - I have visited several neurologists and audiologists trying to relieve my postGK hearing loss and facial numbness issues.  Sadly they basically laugh when you ask about regaining hearing.  Was told just last week that it is impossible.  We have always hope, though!!
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Diagnosed with 1.3 x 1.2 x 1.3 mm right side AN – September 2013; Gamma Knife at UPMC July 2014; Retrosigmoid surgery at Tufts Medical Center June 2018 to remove 2.0 x 1.8 mm tumor

Crazycat

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Re: Hearing - Does it ever come back or get better?
« Reply #3 on: February 10, 2016, 02:07:36 am »
Maybe someday with stem cell replacement technology. Who knows?
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5cm x 5cm left-side A.N. partially removed via Middle Fossa 9/21/2005 @ Mass General. 
Compounded by hydrocephalus. Shunt installed 8/10/2005.
Dr. Fred Barker - Neurosurgeon and Dr. Michael McKenna - Neurotologist.

Doc

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Re: Hearing - Does it ever come back or get better?
« Reply #4 on: February 10, 2016, 12:29:40 pm »
...short answer - probably not  :(
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Left-Translab July '09. Cyberknife Jan 2010. In Apr 2017, four more tumors found; three in the brain and one, 7cm long, on my spinal cord; it was surgically removed. It was cancerous, and so are the others. I've been receiving Chemo since June '18, and I'm still in treatment.

PaulW

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Re: Hearing - Does it ever come back or get better?
« Reply #5 on: February 10, 2016, 07:35:26 pm »
I have read about people having their hearing restored after surgery which is theorized to be linked to the decompression of the nerves and blood vessels in the IAC after the tumor is removed.
This happened straight after surgery however and for small tumors only. Cant find any medical literature where hearing has improved after 6 months   
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10x5x5mm AN
Sudden Partial hearing loss 5/28/10
Diagnosed 7/4/10
CK 7/27/10
2/21/11 Swelling 13x6x7mm
10/16/11 Hearing returned, balance improved. Feel totally back to normal most days
3/1/12 Sudden Hearing loss, steroids, hearing back.
9/16/13 Life is just like before my AN. ALL Good!

Deke17

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Re: Hearing - Does it ever come back or get better?
« Reply #6 on: March 01, 2016, 01:21:39 pm »
In my case, and in most cases I have read about, hearing in the AN side will not be restored. But there are some hearing aides available that can amplify sound or transmit sound waves to the good side.  Depends on your situation and how much hearing you have in your bad ear.....your ENT will be able to help you. 
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4.0 cm AN
Retro sigmoid procedure by Dr. J. Lee
Diagnosed 12/21/2015 (Merry Christmas)
Surgery 1/29/2016
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