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Author Topic: Consultations  (Read 4733 times)

elizabethpoff

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Consultations
« on: March 13, 2016, 04:25:01 pm »
Who does free consultations through the mail with mri
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2mm by 3mm diagnosed on feb 18 2016 ...watch and wait for now

CHD63

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Re: Consultations
« Reply #1 on: March 14, 2016, 04:55:11 am »
Hi elizabethpoff .....

There are a number of physicians throughout the United States who will do free consultations via email or phone call if you send your MRI to them. 

Do you know you have an acoustic neuroma and want another opinion?  If so, let us know your thinking at this point regarding treatment options and we can give you several names of physicians who have much experience in treating specifically acoustic neuroma.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

michellef08

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Re: Consultations
« Reply #2 on: March 14, 2016, 11:27:15 am »
Hi Elizabeth,
Both House Clinic (Dr. Schwartz) and USC (Dr. Friedman) do free MRI phone consults:
https://www.houseclinic.com/consultation/acousticneuroma
http://acousticneuroma.keckmedicine.org

I had both of them (when they worked together at House) perform my surgery with an amazing outcome! They preserved my hearing with the Middle Fossa approach, and I didn't have a single facial or balance issue.

I didn't look into radiation as an option for me as I was 27, but I believe there may also be some surgeons who do free MRI phone consults (Chang at Stanford?), but I'm not positive.
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Diagnosed Dec 2012: AN 1.4 cm with mild hearing loss and tinnitus. Surgery: Middle Fossa at House with Schwartz/Friedman on April 10, 2013. Entire tumor removed, no facial issues, no balance issues, and they preserved my hearing!! Co-leader of the Washington, DC ANA support group since 2016.

elizabethpoff

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Re: Consultations
« Reply #3 on: March 15, 2016, 02:42:22 pm »
I have a 2 by 3 mm tumor... And am thinking  middle fossa
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2mm by 3mm diagnosed on feb 18 2016 ...watch and wait for now

Director

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Re: Consultations
« Reply #4 on: March 16, 2016, 07:17:36 am »
If you did not catch our March webinar, the topic was Hearing Preservation and the Middle Fossa approach. The webinar is archived in the Member Section of our website.
I hope this may be helpful.
Allison Feldman
ANA CEO
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alabamajane

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Re: Consultations
« Reply #5 on: March 16, 2016, 07:42:41 pm »
You have been given some good advice on places to get very experienced opinions from to further your decision making.

Remember, only you can ultimately make a decision on how you are comfortable proceeding. Your's is small indeed and you don't mention what, if any, symptoms you are experiencing which will also play into your decision.

Best of luck to you ,, and continue to ask questions and update us as you go,,

Jane
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translab Oct 27, 2011
facial nerve graft Oct 31,2011, eyelid weight removed Oct 2013, eye closes well

BAHA surgery Oct. 2014, activated Dec. 26

elizabethpoff

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Re: Consultations
« Reply #6 on: March 17, 2016, 09:23:59 am »
Thanks to all of you for your time and answers. Lots to think about..appreciate this forum... I can feel the compassion that comes from those who have been through the experience .. I hope someday I can help others too :)
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2mm by 3mm diagnosed on feb 18 2016 ...watch and wait for now
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