Author Topic: The closet I could find...  (Read 2429 times)

Jessa

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The closet I could find...
« on: May 15, 2016, 08:07:32 am »
Hi I was diagnosed with a ?schwannoma A year ago today, my tumour involved the vagus and hypoglossal cranial nerves, I was also 27 weeks pregnant with my first child, I have deficits from the surgery such as vocal cord paralysis, quite hoarse voice, and at times difficulty swallowing. I want to have more babies but due to the uncertainty of it returning or me putting my future child's life at risk I am a bit lost in what to do! Anybody else that has had or is having this?

Tod

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Re: The closet I could find...
« Reply #1 on: May 15, 2016, 02:28:13 pm »
Hi Jessa, there are few of us that have suffered vocal cord paresis, swallowing difficulties, and the rest. I had a 32-hour surgery and wound up with a completely paralyzed left vocal fold and could not speak above a whisper for a year. Eventually my voice returned to about 80% of normal. I still have difficulty yelling or communicating in very noisy/stressful environments. The swallowing difficulties "enhance" these problems by adding to the hoarseness. Interactions with the vagus nerve result in occasional unpleasantness.

I don't *think* these are deal breakers for future pregnancies, but you need to sit and talk with your doctors about it. You may wish to at least wait another year before trying. I know I felt much better at the end of year two than at the end of year one.

-Tod
Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.