Author Topic: Why the tumor seems bigger after the radiosurgery?  (Read 17229 times)

mcrue

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  • Greg Mech
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Re: Why the tumor seems bigger after the radiosurgery?
« Reply #30 on: August 08, 2016, 07:48:29 pm »
I would definitely contact Dr. Schwartz at the House Ear Clinic in Los Angeles. He performs both Gamma Knife and traditional microsurgery, and has experience treating "radiation failures." He offers free phone consultations when you mail in your MRI and information.

Best wishes.
5/19/2015 - 40% sudden hearing loss + tinnitus right ear

6/26/2015 - AN diagnosed by MRI - 14mm x 7mm + 3mm extension

8/26/2015 - WIDEX "ZEN" hearing aid for my catastrophic tinnitus

12/15/2015: 18mm x 9mm + 9mm extension (5mm AGGRESSIVE GROWTH in 5 months)

3/03/2016:   Gamma Knife - Dr. Sheehan

JLR

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Re: Why the tumor seems bigger after the radiosurgery?
« Reply #31 on: August 09, 2016, 05:22:00 am »
Thanks very much. Has anyone on the forum had to be retreated.? I'm just hoping I can have the CK rather than any type of surgery. So bummed out. Joan

Tumbleweed

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Re: Why the tumor seems bigger after the radiosurgery?
« Reply #32 on: August 13, 2016, 01:01:48 pm »
Hi, Joan:

I PM'd you in regards to your question about pretreatment with CK.

Best wishes,
TW
L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

JLR

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Re: Why the tumor seems bigger after the radiosurgery?
« Reply #33 on: August 13, 2016, 09:10:00 pm »
Hi TW yes I received. Again, thanks so much. Most appreciated. Joan

mcrue

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  • Greg Mech
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Re: Why the tumor seems bigger after the radiosurgery?
« Reply #34 on: August 14, 2016, 05:54:19 am »

If your heart is really set on "retreating with radiation",  then I would certainly contact as many radiation specialist throughout the country as possible to find out if that's possible, and their opinion for this delicate and more complicated matter.

Here are some of the top 8 places for radiosurgery, and the best neurosurgeons in the USA to start you off. I would simply mail a copy of your most recent MRI and medical history for their free consultation over the phone.

Dr. Lunsford - Gamma Knife at UPMC Pittsburgh, PA
Dr. Chang - Cyber Knife at Stanford, CA
Dr. Kondziolka - New Jersey, Manhattan, New York
Dr. Sheehan - Univ. Virginia - Gamma Knife - UVA
Dr. Schwartz - House Ear Clinic -  Los Angeles, CA
Dr. Friedman - Keck Univ- California
Stephen Tatter and Michael Chan - Wake Forest University North Carolina - Gamma Knife
Clinton A. Medbery, III, M.D. Southwest Radiation Oncology - Oklahoma
And perhaps your local Gamma Knife and Cyber Knife specialists

« Last Edit: August 14, 2016, 09:20:34 pm by mcrue »
5/19/2015 - 40% sudden hearing loss + tinnitus right ear

6/26/2015 - AN diagnosed by MRI - 14mm x 7mm + 3mm extension

8/26/2015 - WIDEX "ZEN" hearing aid for my catastrophic tinnitus

12/15/2015: 18mm x 9mm + 9mm extension (5mm AGGRESSIVE GROWTH in 5 months)

3/03/2016:   Gamma Knife - Dr. Sheehan

JLR

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Re: Why the tumor seems bigger after the radiosurgery?
« Reply #35 on: August 14, 2016, 04:19:46 pm »
Thanks very much. But regarding surgery. Isn't that a very long heard 7 hour surgery ??

PaulW

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Re: Why the tumor seems bigger after the radiosurgery?
« Reply #36 on: August 14, 2016, 09:05:01 pm »
I believe if you are to get a second round of radiation they will do a PET scan to determine how much of the tumour is dead and how much is alive.
It could be that only a small portion of the tumour is active and that is the part they will treat. Not the whole tumour again.
When people get AN's retreated its normally not the whole tumour.
This reduces radiation doses and complications
10x5x5mm AN
Sudden Partial hearing loss 5/28/10
Diagnosed 7/4/10
CK 7/27/10
2/21/11 Swelling 13x6x7mm
10/16/11 Hearing returned, balance improved. Feel totally back to normal most days
3/1/12 Sudden Hearing loss, steroids, hearing back.
9/16/13 Life is just like before my AN. ALL Good!