Hello all,
Quick overview - i was diagnosed with a 3cm an when I was 36 weeks pregnant. I had RS surgery in July 2018 5 weeks post partum, in which a sliver was left behind, to preserve my facial nerve. Unfortunately, I experienced a regrowth and had to have GK radiation 1 year ago. Thankfully, my recent scans have shown lots of necrosis which is good!
My doctor said its ok to get pregnant now, and to live my life and not let this AN get in the way of my life. Even still there is some nervous/paranoid thought in the back of my head that somehow the tumor would be reactivated due to pregnancy hormones. I am also
Nervous my lingering symptoms will flare up which seems like a definite possibility given when I was pregnant was when I even discovered the tumor iin the first place. Right now, a small dose of ativan calms down my symptoms (mostly facial twitching, but of course if I get pregnant I cant take that).
Has anyone gotten pregnant post surgery & radiation (or either or) that Can shed light? I know there are some other threads regarding this, but the stories seem mixed - some had no issues at all, others speculated it did speed up growth. Again, my tumor is dying bases on recent scans.
Many thanks.
