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Author Topic: First MRI post GK  (Read 6111 times)

Glupson

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First MRI post GK
« on: November 02, 2015, 10:30:06 am »
6 months after GK treatment, I had my first postie-toastie MRI  8)

Obviously, I was stressed... Even if my symptoms disappeared 2-3 months after GK, even if I feel really good.

Well, the result is encouraging – George's size is still same, but he suffers  ;D
There is a quite important necrosis in the centre of the tumour, and that is exactly the desired outcome.

Next control will be in 6 months, if everything continues as for now.

I am happy to share this news with you, as I know how important it is for new-diagnosed people to see some good results and have some encouraging news. 
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sunny

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Re: First MRI post GK
« Reply #1 on: November 02, 2015, 02:17:59 pm »
Thank you for your post, Glupson, what great news!

I'm glad you feel "really good," and WOW your symptoms disappeared?
May I ask what they were?

Bye bye, George! (good riddance)
Take care,

sunny

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Right side A.N.  (11 x 9 x 5)
Symptoms -- 2/18/15 sudden partial hearing loss and constant tinnitus
Diagnosed -- 4/24/15 by my ENT with MRI
Treatment -- 6/17/15 first of three CK treatments @ Stanford with Drs. Chang and Hancock
Treatment Completed! -- 6/19/19

Glupson

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Re: First MRI post GK
« Reply #2 on: November 03, 2015, 01:50:26 am »
Hello Sunny,

Thanks for you support.

I have a trigeminal schwanomma, which is very rare, and very similar to an AN, size 19mm. And it doesn't affect my hearing. My symptoms were quite strong tingle on the left side of my face, but no pain, and no other problems. As the toumour is partly necrosed, it makes less pression on the trigeminal nerve.
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DizzyMamaIL

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Re: First MRI post GK
« Reply #3 on: March 03, 2016, 04:14:44 pm »
Thank you for the post. It's very encouraging to see good outcomes!
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February 2012 - first doctor visit for vertigo
January 2015 - sudden hearing loss
January 2016 - dx AN 1.1 cm x 2 cm
May 2016 - radiation; June 2016 to present - headaches, vertigo; October 2016 - one episode of facial paralysis

Glupson

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Re: First MRI post GK
« Reply #4 on: May 02, 2016, 02:20:22 am »
Hello,

Here I am for one-year follow-up.
I had my 2nd MRI after the procedure, and everything seems to be ok - less necrosis than last time, but no change in size.

Next MRI in one year  8)
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Patti

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Re: First MRI post GK
« Reply #5 on: May 02, 2016, 02:26:29 am »
and you still feel well? no facial nerve problems? good for you!!!!   patti
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4 cm AN removed 12/2000
subsequent brain swelling
removal of part of cerebellum
face, scalp,tongue numbness and partial paralysis
no corneal sensation and no tears-frequent eye issues
cognitive issues
Regrowth (3.1 x ..86 cm) treated by SRS on November 6, 2015

Glupson

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Re: First MRI post GK
« Reply #6 on: May 02, 2016, 07:03:23 am »
Quote from: Patti on May 02, 2016, 02:26:29 am
and you still feel well? no facial nerve problems? good for you!!!!   patti
No facial nerve problem, thanks  :)
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Glupson

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Re: First MRI post GK
« Reply #7 on: April 28, 2017, 05:55:23 am »
Hello,
Here I am for two years follow-up: the tumor looks the same size as before, maybe 1mm smaller, but it makes less pressure on the tissues around.
So far, so good!
Next control in one year.
:)
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