venting

[Brendalu]

Battyprincess,
I called my attorney's paralegal on Friday to report new diagnosis and hospital stays, new meds, etc.  She said the same thing to me.  It has been since July when I got my second turn down.  I changed banks and on the original forms they ask if you want direct deposit and I filled out the info.  I called SSD to find out how to make the change on the paperwork.  They transferred me four times because they couldn't find my paperwork!  Finally, the person I spoke to was in the hearing office getting ready to set my appointment.  I let my paralegal know that on Friday and so she called to see if the date was set yet.  They said that it was set for February, but it may not go to the hearing process because of all of the case studies I submitted to my paralegal who toned them down and sent them on.  They can't allow SSD for one person and turn the next down with the same disability.  I hope this helps.  I think because I wrote to all of my Congessmen and complained about how long the process takes it may have helped.  It is worth a shot.  I am keeping you in my prayers.
Hugs,
BrendaO

[Patti UT]

What a system we have. Only in America. You get sick and can't work, and get turned down and held off for "a Year" did you say BP.??   You sneak across the border, walk into the first welfare office and get everything under the sun offered FREE, no denial, no appeal, no hearing. you walk into a hospital, no need for insurance, it's all free.  In my neck of the woods, even the kids l ski porgramthrough the school is free to illegals, which the rest of are charged forr and then we have to have to pay extra to cover the "free skiiers" and donate ski clothes and equipment for them.  Down in San Diego, the welfare office isn't allowed to even "ask'" them if the are citizens when they show yup to apply for instant benifits, because "it is against their constitutional rights"
Then they go off and work under the table while collecting.          What the h### is that all about??  pretty soon this country will have more takers than givers, and then people like us who need the benifits won't get it because there is nothing to get.

This makes me so angry I coulp spit nails  (one of my grandma's sayings)  Batty really needs this to happen faster than a year

OK OK, enough ranting,  but the thread was titled "VENTING"

patti UT

[Battyp]

Thanks Brenda..I'm planning on doing the same thing seeing how this is an election year I doubt anything will happen but it might make me feel better.

Patti the whole system stinks.  When I went to the childrens and family office I was the only white person their not getting any help.  Everyone else who walked in unaided and drove themselves there were there to pick up their checks.  I had to have my mom drive me as it was too far on roads I can't handle.  How pathetic is that?  According to the state standards I'm 189.00 more than the poverty level so my son doesn't even get free lunch or insurance help.  Of course by the time I pay the insurance and lunch I'm below poverty  LOL 

one day I'll get a break!

[Chris]

Ok, now I feel like venting..if that's ok with you. Who do these specialists think they are? I finally got to see my Brisbane specialist today. He has been away with a broken collarbone and no-one else could see me. The good news is the swelling has stopped and the little sucker is dying. Unfortunately it has not started shrinking yet. Anyway, while he was talking to me, a female in a white coat came in. When he asked for her opinion she said she has read my casenotes and immediately said "this thing has got to come out". He explained that I have had radiation and we are waiting and watching to see what it does next. During this time I was not introduced to her and felt like I was invisible. In an effort to maintain my temper I kept my mouth shut. I should have asked her who she is and what experience she has. My specialist then said that surgery will definitely result in facial paralysis. I felt like saying, if I have to have it done at this hospital I wouldn't be surprised. Seriously I would have to look at travelling interstate for a more experienced surgeon. Sometimes I feel like I am living in a third world country (a bit over exaggerated I know).

[Brendalu]

Chris,
That drives me nuts too!  Sometimes doctors can be so rude!  Because I am me I probably would have said excuse me" You seem to know me and my credentials, but I know nothing about you, so please introduce yourself."  I think sense you were blindsided by that one you should call your doctor's office and asked who was consulting with your doctor (you will surely get a bill from that person---they don't usually even read for free).  When you get the person's name check him or her out on the net.  Good luck, Chris.  Keepin you in my prayers.
Hugs,
BrendaO

[Larry]

Chris,

AGREE with ya. My ENT surgeon (who I sacked after the op) told me a bunch of lies and mis informed me. You place your life in these peoples hands and not all but some of them just want to see the dollars in their  bank account.

There are some good ones around so try not to get too clouded.

It sounds like you are on the right path though.

i would probabley write to your specialist and ask who the hell that woman was and shouldn't she have been introduced to me and who gave her permission to look at my case notes (they are yours).

cheers


laz

[Crazycat]

Chris, When was your last MRI? What are your symptoms - if any - of late? If the thing is shrinking and dying then you should continue watching and waiting. Do you have any hearing in your effected ear?

               Paul

[Chris]

I have calmed down a bit after yesterday after eating pizza 
I agree with my specialist about waiting and watching as it is too early to suggest anything else. I have no hearing in my AN side and I don't expect that to come back so that really doesn't bother me.  My specialist is hopeless to contact so I may just leave it till next time and speak up if it happens again. I have faith in what he is telling me and I do sense if my head is doing anything different, after all I did diagnose myself and I don't earn anywhere near as much as the specialists do i'm sure. I won't hesitate to contact him if I feel the need.  I just get really frustrated with some specialists and the way they treat people.
Thanks for letting me vent. You are a great bunch.