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Author Topic: Inspiring article on life after an AN  (Read 5303 times)

CHD63

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Inspiring article on life after an AN
« on: April 15, 2010, 03:03:24 pm »
Just wanted to share an article about a fellow ANer, who has found an exciting new life after being diagnosed and treated for an acoustic neuroma.  She gave me her permission to put this link on here.  Enjoy.

http://www.dailymail.com/Entertainment/201004140755

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Jim Scott

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Re: Inspiring article on life after an AN
« Reply #1 on: April 15, 2010, 03:14:39 pm »
Clarice ~

Excellent article about January Johnson Wolfe and her work with children's dance theater following her AN surgery.  This is the kind of positive, 'shifting gears' attitude I wish all post-op/radiation patients that have overcome whatever deficits they carry, could have.  Thanks for posting it.

Jim   
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

lori67

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Re: Inspiring article on life after an AN
« Reply #2 on: April 15, 2010, 03:45:31 pm »
That's amazing!  Hooray for her!  A great way to make lemonade after life hands you lemons!

Lori

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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Lizard

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Re: Inspiring article on life after an AN
« Reply #3 on: April 15, 2010, 07:36:07 pm »
Fantastic!  What a great story...
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Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

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CHD63

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Re: Inspiring article on life after an AN
« Reply #4 on: April 16, 2010, 07:29:25 pm »
Just came home from January's absolutely precious dance production of her new children's book, "Chasing Butterflies Meeting Violet."  It played to an SRO crowd of around 500 seats.  I am once again inspired by what she has done, in spite of a very rocky recovery from surgery to remove a large AN three years ago.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

ppearl214

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Re: Inspiring article on life after an AN
« Reply #5 on: April 17, 2010, 07:46:16 pm »
Thanks Clarice for sharing this! Definately most inspiring! We can all take away something from this journey!

Phyl
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Soundy

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Re: Inspiring article on life after an AN
« Reply #6 on: April 18, 2010, 09:00:08 am »
Quote from: Jim Scott on April 15, 2010, 03:14:39 pm
Clarice ~

Excellent article about January Johnson Wolfe and her work with children's dance theater following her AN surgery.  This is the kind of positive, 'shifting gears' attitude I wish all post-op/radiation patients that have overcome whatever deficits they carry, could have.  Thanks for posting it.

Jim   


I moan and groan sometimes about side effects ... but I have tried to shift gears and charge forward ... I can no longer sub at school alot due to fatigue but can volunteer for things that I can pick and leave if need be ... some friends and family would have me in a corner twiddling my thumbs ...but shifting gears has saved some of my sanity


thanks for article
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Translab July 2 ,2007
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nancyann

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Re: Inspiring article on life after an AN
« Reply #7 on: April 18, 2010, 10:00:44 am »
Thank you Clarice for posting this.  Looks like 'a little magic' goes a long way !
Always good thoughts,  Nancy
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
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4cm in Pacific Northwest

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Re: Inspiring article on life after an AN
« Reply #8 on: April 18, 2010, 10:23:56 am »
Clarice,

This is just the sort of inspirational story I, personally, really needed right now. Thank you SOOH much for posting and sharing this.

This is a GREAT “keep moving forward” story example.

DHM
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4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

4cm in Pacific Northwest

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Re: Inspiring article on life after an AN
« Reply #9 on: April 18, 2010, 03:33:32 pm »
Ok here is what I found about the person in the article
January Wolfe - Artistic and Managing Director
http://www.januarysacademy.com/The_Academy_of_Arts_at_Januarys/Faculty.html

Story about her company
http://www.januarysacademy.com/The_Academy_of_Arts_at_Januarys/About_Us.html

A dance career AFTER acoustic neuroma treatment. Very cool!!!!

Thanks again Clarice for bringing the original article to our attention.

DHM :)
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4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

CHD63

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Re: Inspiring article on life after an AN
« Reply #10 on: April 18, 2010, 08:28:47 pm »
Actually January was an established dance instructor in the area long before her AN was diagnosed.  The AN just has altered the course of her career(s).  A shining example of how to redirect the gifts we are all given, when one pathway becomes diverted.

She was the first AN patient I talked with following my diagnosis and she was soooooo encouraging, even though she was struggling herself at the time.

I am still inspired and hope others can be inspired, as well.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Keri

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Re: Inspiring article on life after an AN
« Reply #11 on: May 04, 2010, 01:56:03 pm »
Clarice,
Thank you for sharing! I had read this a couple of weeks ago. I haven't been on in a while to comment.

Keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
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pjb

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Re: Inspiring article on life after an AN
« Reply #12 on: May 07, 2010, 06:39:26 pm »
I had trouble getting into it, it said the page was not found ?

Pat
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Diagnosed with a 1 cm. AN had Retrosigmoid
Approach surgery July of 2009, several problems after surgery.

CHD63

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Re: Inspiring article on life after an AN
« Reply #13 on: May 08, 2010, 08:08:04 pm »
Pat .....

I am sorry you missed the online article in one of our local daily papers.  Apparently they only keep articles up for a couple of weeks.

January had several problems following the surgery for her AN removal three years ago and it is amazing how she did not let it get her down, but has redirected her creative energies in wonderful new ways.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011
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