Loss of Taste Buds Post CK

[JLR]

Hi All, I am about 6 weeks post CK, and have noticed this week that I have a (bit)  loss of taste buds.  The other morning I was having toast and jam (red Rasp) and as Im eating realized it had zero flavor.. I did a bit of googling and all the sites said it was temporary.  And I can add I have been having headaches..real bangers..that only last a few seconds ..this happens a few times a day..and my hair texture has also changed. I'm guessing this is all the radiation doing its thing to my AN. AND the tinnitus is getting even louder..Any other symptons I'm likely to get? Thanks for the feedback. Joan

[TJ]

JLR

Yes my taste changed also after CK, it did only last for a couple of weeks.  My tinnitus also went a lot higher, some days it is loud and some days back to what it was.  I am almost two months past CK.  And yes I had headaches for about two weeks straight but they have stopped.

TJ

[ernie h]

jlr, very common issue be patient it will come back good luck, ernie.

[Ric]

Hello,
I am about 12-13 years post CK for my AN.  I have been experiencing loss of taste and numbness in the mouth for year.  It use to last a week or so then go away, but as time has past it is now pretty much permanent.  The feeling I get is as if there is fuzz in my mouth over all my teeth/gums and tongue.  As if my teeth are all wearing little sweaters. Over time, the sensation lasted longer and longer and the time free of it got shorter and shorter.  Now I am beginning to have pain in my teeth.  I am wondering if this is from the CK i had.  My doctor claimed he was not familiar with this being a side effect, however I highly suspect it is a side effect of radiation.  It is becoming very uncomfortable. 

[mwatto]

Hi Ric I get this every now and again along with earache, sometimes a pain behind ears or back throat. Two and a half years post CK. I think its trigeminal related. My doctor said try low dose 5 mg Amitryptaline for nerve pain at night - but I find swishing with mouthwash helps (maybe its the menthol) also find if I keep inflammation down eg boswellia, curcumin, D3  and melatonin then everything reverts to normal - I have (almost) no tinnitus no other issues. I also take palmitoylethanomide (PEA) a natural compound which no script required but works as anti inflammatory and analgesic. I have also tried Bromelain and Honopure and Bio 30. Chewing a crisp apple also helps me!