Author Topic: Amitryptyline  (Read 3392 times)

mwatto

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Amitryptyline
« on: July 17, 2021, 02:06:18 am »
Hi is anyone else on Amitryptaline for nerve pain/sleep? Today I was prescribed 2-5mg of a pill as safe and effective for trigeminal nerve pain (earache mainly) to help me sleep as I sometimes get this at night - never in day. Would really like feedback as I feel a bit anxious. Up to now and I must continue to take melatonin which has been great but not that helpful with nerve pain. Had this earache prior to Cyberknife am two and a half years out. Please respond.
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

SP

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Re: Amitryptyline
« Reply #1 on: July 17, 2021, 04:04:38 am »
Hi Michele!

I've not been on this medication, hopefully it helps you out with the nerve pain so you can sleep well at night.

I found some of my symptoms, like shooting nerve pain, wonky head and headaches took, over 3 years post treatment to lessen or resolve.

Stella
My AN Story – Sydney to Stanford CK

2.3 x 2.2  June 2022@7yrs
2.9 x 2.9  May 2020@5yrs
2.9 cm  Mar 2019@4yrs
2.9 cm  Aug 2018@3yrs
3.1 cm  Aug 2017@2yrs
3.2 cm  Aug 2016@1yr
3.2x3.0x2.5cm AN; CK Aug 2015

mwatto

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Re: Amitryptyline
« Reply #2 on: July 18, 2021, 12:26:53 am »
Hi Stella! Hope all going better with you. Yep I am debating this- I am back on the PEA and melatonin and that is helping again. I just cannot understand why after two and a half years I cannot sleep on that side without the nerve pain maybe its the pressure. I still have a tender spot also above ear back of head after treatment- tender to touch. No symptoms in day at all - healthy and very energised - am seldom tired even though I wake frequently at night.
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

mwatto

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  • Posts: 454
Re: Amitryptyline
« Reply #3 on: July 21, 2021, 06:39:47 pm »
My specialist has advised me not to take this.
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

SP

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  • Posts: 183
Re: Amitryptyline
« Reply #4 on: July 21, 2021, 07:27:23 pm »
Sounds like you have done your research Michele, did they say why not?

Stella
My AN Story – Sydney to Stanford CK

2.3 x 2.2  June 2022@7yrs
2.9 x 2.9  May 2020@5yrs
2.9 cm  Mar 2019@4yrs
2.9 cm  Aug 2018@3yrs
3.1 cm  Aug 2017@2yrs
3.2 cm  Aug 2016@1yr
3.2x3.0x2.5cm AN; CK Aug 2015

mwatto

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  • Posts: 454
Re: Amitryptyline
« Reply #5 on: July 22, 2021, 12:45:21 am »
Hey Stella he said it might just cause other issues - for example liver and I know its been linked long term with greater risk of dementia. He just said try stay natural try acupuncture. He very old- has been an oncologist for like 40 years. He ok with melatonin and natural anti inflammatory.
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing