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Author Topic: New study by Neuro Oncology on VS worth a read  (Read 2168 times)

mwatto

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New study by Neuro Oncology on VS worth a read
« on: March 08, 2024, 07:29:19 pm »
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Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

SP

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  • Posts: 183
Re: New study by Neuro Oncology on VS worth a read
« Reply #1 on: March 08, 2024, 09:46:21 pm »
Good outcomes for stereotactic radiosurgery. Thanks for keeping us up to date Michele!

Stella :)
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My AN Story – Sydney to Stanford CK

2.3 x 2.2  June 2022@7yrs
2.9 x 2.9  May 2020@5yrs
2.9 cm  Mar 2019@4yrs
2.9 cm  Aug 2018@3yrs
3.1 cm  Aug 2017@2yrs
3.2 cm  Aug 2016@1yr
3.2x3.0x2.5cm AN; CK Aug 2015

DanFouratt

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Re: New study by Neuro Oncology on VS worth a read
« Reply #2 on: March 09, 2024, 07:06:27 am »
Thanks for sharing, I continue to feel fortunate that i was able to go the SRS route. Sometime I some the future I will have my first follow up  and determine how it worked.

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Dan Fouratt             63 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23            
MRI 6/14/24            7mm x 12 mm

mwatto

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Re: New study by Neuro Oncology on VS worth a read
« Reply #3 on: March 09, 2024, 08:31:09 pm »
Yes I agree Stella and Dan. I was also very inspired to read Mark's article also on CK 23 years ago in the latest AN newsletter.
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Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

Berta

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  • Posts: 6
Re: New study by Neuro Oncology on VS worth a read
« Reply #4 on: May 31, 2024, 10:33:27 am »
Thanks for this!
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Diagnosed in 2019 at 3mmx4mm; last MRI in January 2024 - 7mm x 5.5 x 5 mm (TV x SI x AP). Currently investigating radiotherapy/proton beam options.
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