Author Topic: Drug therapy for VS (2021)  (Read 4303 times)

mwatto

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Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

donjehle

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Re: Drug therapy for VS (2021)
« Reply #1 on: April 06, 2024, 07:13:43 pm »
Thanks for sharing research on Vestibular Schwannomas, Michele!
You add value to our forums!
Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.

mwatto

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Re: Drug therapy for VS (2021)
« Reply #2 on: April 26, 2024, 07:41:17 pm »
Thank you Don!
Always trying to understand what drives growth in AN. I am interested in the pathways and then choosing supplements that may target these. I do the same with my diet. Feeling really good at the moment - for a while I thought I had Long Covid too! No more pain in ear and behind eye (high dose PEA and melatonin seem to have helped a lot and a mouth guard at night so maybe this was TMJ). Hearing and balance remain good.
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing