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Author Topic: Radiation post treatment update  (Read 2180 times)

Moselle

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Radiation post treatment update
« on: June 03, 2024, 01:04:42 pm »
Good news from MRI results.  Tumor is shrinking.  Been a year since the gamma ray one time zap to stop a fast growing tumor.
4/23/23. 9.6 x 17 x 8.2 mm
11/3/23. 12.5 x 21.4 x 12.3
5/31/24.  11 x 17 x 12 mm
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donjehle

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Re: Radiation post treatment update
« Reply #1 on: June 09, 2024, 06:37:10 pm »
Wonderful news, Moselle!  Thanks for sharing that and encouraging the rest of us.  :)
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Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.

DanFouratt

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Re: Radiation post treatment update
« Reply #2 on: June 11, 2024, 04:50:41 pm »
Great to hear, my results will be on Friday, hopefully as good as yours.
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Dan Fouratt             63 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23            
MRI 6/14/24            7mm x 12 mm

mwatto

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Re: Radiation post treatment update
« Reply #3 on: June 11, 2024, 07:46:33 pm »
Really pleased for you Moselle! Its always a relief. And it gives us all hope.
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Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

SP

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Re: Radiation post treatment update
« Reply #4 on: June 11, 2024, 08:42:15 pm »
Great news Moselle  :D

Stella
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My AN Story – Sydney to Stanford CK

2.3 x 2.2  June 2022@7yrs
2.9 x 2.9  May 2020@5yrs
2.9 cm  Mar 2019@4yrs
2.9 cm  Aug 2018@3yrs
3.1 cm  Aug 2017@2yrs
3.2 cm  Aug 2016@1yr
3.2x3.0x2.5cm AN; CK Aug 2015

DodgeAU

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Re: Radiation post treatment update
« Reply #5 on: June 12, 2024, 02:32:47 am »
Happy to hear the good news, Moselle.
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Sep 2023: AN shrunk by 3mm
Jun 2023: Hemifacial spasm disappeared
Oct 2022: MRI shows no growth, hemifacial spasms started
Mar 2022: GK treatment at Peter Mac Melbourne
Dec 2021: 18mm x 10mm
Oct 2019:  12x7 mm, Watch mode
Mar 2019: 7.5x5.5 mm, Watch mode
Aug 2018: Diagnosed 6x4x4 mm AN left

Dlip246

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Re: Radiation post treatment update
« Reply #6 on: June 12, 2024, 07:24:09 am »
That's terrific!!
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1.4 x .83 x 6 cm (14 x 8.3 x 6 mm).  watched slowly grow for 2 years then CK January 2022.  3 months post CK hazy head, 6 months post CK now having hemifacial spams same side. Spasms/contractions/cramps haven't stopped.
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