Author Topic: what is with all the terrible topics ??  (Read 5530 times)

lmurray69

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what is with all the terrible topics ??
« on: December 03, 2006, 08:55:07 pm »
wow I cant believe all the scams on here today can we do somethingabout the ades
radiation feb 05, gammaknife, tumor is 1.2x0.08/ surgery Nov 1st 2006 Dr House/Swarts/

Derek

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Re: what is with all the terrible topics ??
« Reply #1 on: December 04, 2006, 03:55:16 am »
I agree...I don't see this happening with other sites...why?  Maybe it's time that all first time 'newby' posts were filtered by admin in the first instance to vet whether they are bona fide?

Derek
Residing UK. In 'watch & wait' since diagnosis in March 2002 with right side AN. Initially sized at 2.5cm and now self reduced to 1.3cm.
All symptoms have abated except impaired hearing on affected side which is not a problem for me.

kat

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Re: what is with all the terrible topics ??
« Reply #2 on: December 04, 2006, 05:12:03 am »
I agree . There are more spams than real topics lately! It is bad enough to get dozens of emails daily trying to sell viagra and valium etc at home  and then have to face some more junk on this site ! How can it be stopped ?

Kat
2.2 cm AN diagnosed July 2004 . GK at  the Royal Hallamshire
Sheffield UK in April 2005 2nd MRI in December 06 showed signs of the AN shrinking and MRI in FEB 08 showed no change . SO FAR SO GOOD .

Derek

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Re: what is with all the terrible topics ??
« Reply #3 on: December 04, 2006, 11:19:08 am »
I have just forwarded an email to Judy Vitucci, Executive Director of ANAUSA, notifying her of the discontent amongst members re the continual SPAM posts and inviting her to adopt a vetting system that will prevent this from happening and re-occurring.

I will make you aware of any response that I receive.

Regards

Derek
Residing UK. In 'watch & wait' since diagnosis in March 2002 with right side AN. Initially sized at 2.5cm and now self reduced to 1.3cm.
All symptoms have abated except impaired hearing on affected side which is not a problem for me.

amymeri

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Re: what is with all the terrible topics ??
« Reply #4 on: December 04, 2006, 04:35:03 pm »
I belong to another board and for the 6+ months I have been on that board there has never been an instance of SPAM.  This is because all new members must be approved by the webmasters and because the board is monitored daily.  I would love something like that here.  I find the frequent bogus posts irritating and rude, as I am sure most of you do as well.

I hope we can clear this all up

Amy :-[
Amy

4 cm right AN removed restrosigmoid 4/13/06
Partial facial paralysis, SSD and trigeminal numbness for now

Jim Scott

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Re: what is with all the terrible topics ??
« Reply #5 on: December 04, 2006, 05:21:15 pm »
I've reported at least 6 spam postings in the past 24 hours.  It's becoming a real annoyance.  I've let the administrator know that this is becoming a problem and will have a very negative effect on the forum if not stopped. 

Vetting newbies can be done and certainlty more stringent monitoring is becoming necessary.  It's clear that the messageboarsd is being targeted by spam artists and that will eventually render it useless, if not stopped - now.  I, for one, don't care to wade through a bunch of garbage just to find a 'real' post.  Enough!
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

lmurray69

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Re: what is with all the terrible topics ??
« Reply #6 on: December 04, 2006, 06:13:20 pm »
You know if they want on here they will .Keep changeing names or what ever .Its a sham that they have to do it to people who need answers or to vent..we are all here for everyone. just wish they would leave us alone..Thanks for all the replys ..I totally agree!  Filter the newbys..
radiation feb 05, gammaknife, tumor is 1.2x0.08/ surgery Nov 1st 2006 Dr House/Swarts/

ixta

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Re: what is with all the terrible topics ??
« Reply #7 on: December 04, 2006, 10:21:19 pm »
I hope you all didnt think my http://www.killkuato.com was a scam, doing this helped me externalize the tumor and keep it outside my body while I made fun of it.
5cm left AN from IAC to cerebellum/brainstem.
Zapped out by Shahinian @ SBI over the course of 6.5 hrs on Monday 11/27 2006.
thestatus.com   h   biologyfly06

Derek

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Re: what is with all the terrible topics ??
« Reply #8 on: December 05, 2006, 04:41:57 am »
Hi there Ixta...

Quite acceptable (if you are into that sort of thing!) as whilst it is a humorous approach (and we need plenty of that) it is nevertheless AN related as distinct from a totally unrelated SPAM post.

Regards

Derek
Residing UK. In 'watch & wait' since diagnosis in March 2002 with right side AN. Initially sized at 2.5cm and now self reduced to 1.3cm.
All symptoms have abated except impaired hearing on affected side which is not a problem for me.

Mark H

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Re: what is with all the terrible topics ??
« Reply #9 on: December 05, 2006, 03:25:05 pm »
This isn't as bad as it could be. One of my NF boards has had more than 150 in the last week. One of our members suggested (very toungue in cheek) that we start a seperate section for porn and spam posts. Maybe they'd put all their stuf there.   ;D
Mark

Lisa B

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Re: what is with all the terrible topics ??
« Reply #10 on: December 09, 2006, 07:12:13 am »
I would like to know if i can remove these thing even from my list of forum topics.  My son sometimes sits with me while I'm on line and sees what's on the screen. My screen is set to a large font and you would have to be blind to miss some of the porno and drug forum boxes. 
How to...is the question....
Wait and watch - 1ccx6mmx6mm - Right Side
Diagnosed August '06

Derek

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Re: what is with all the terrible topics ??
« Reply #11 on: December 09, 2006, 08:26:20 am »
Hi Lisa...

I share your valid concerns re youngsters and others inadvertently seeing this garbage. I am no techno wizard re computers and do not have a ready answer but really it should not be necessary for us to have to devise such methods as the website administrators could quite easily rectify the situation. It is now some 5 days since they assured me that a fix was iminent but we are still being inundated with this unwanted intrusion on a daily basis. I intend contacting the administrators again next week if there is still no improvement.

Regards

Derek
Residing UK. In 'watch & wait' since diagnosis in March 2002 with right side AN. Initially sized at 2.5cm and now self reduced to 1.3cm.
All symptoms have abated except impaired hearing on affected side which is not a problem for me.

nancyann

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Re: what is with all the terrible topics ??
« Reply #12 on: December 09, 2006, 08:51:40 am »
I've only been on this forum for a couple of months.   

Is it always like this around this time of year??   I didn't notice it so much in October, or maybe I wasn't noticing MUCH around October !!! lol    Nancy
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

kat

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Re: what is with all the terrible topics ??
« Reply #13 on: December 09, 2006, 10:06:50 am »
Hi everyone

I do not really have any answers as to how to fix this problem being a total technophobe. One idea though might be for everyone to have a secure password to access this site We would all have to give our e mail adresses and personal details which would be kept secure. In the UK Bana had a very active AN forum before they changed the site to access to members only by password which has had the unfortunate effect to reduce the number of letters considerably. I hope that an agreeable solution is found sooner rather than later .

Regards Kat
2.2 cm AN diagnosed July 2004 . GK at  the Royal Hallamshire
Sheffield UK in April 2005 2nd MRI in December 06 showed signs of the AN shrinking and MRI in FEB 08 showed no change . SO FAR SO GOOD .