Thank you for the information Janet I will have a look round the site, but I'm sure you know what its like, reading and computers is not the best thing when the old head is bad!! I have pain in the back of my head around the scar but the headache really is at the front on the side I had the AN removed. My neck and shoulders are the same as well, stiff and sore. The medication that Im on as well is not good on the kidneys and liver and that is something that worries me too, but I think if you have regular liver and kidney function blood tests they should (so they say) pick up any problems before anything serious.
I live in Australia, and of course there are certain things we are unable to get that are available in the US. And I think that Botox is really expensive, but I am beginning to think that anything is worth a try. I have had corticosteroid injections and local injections in my head to help settle the nerves, they didnt really have much of an effect.
I have suffered from migranes for about 9 years, which is a long time when you are only 26!! So I have seen plently of neurologists in the past. This is going to sound strange but I have not actually had a migrane since the surgery, though the pain of the headaches I have now is just as bad but it is a different pain and I'm not thowing up!! My GP has suggested a pain management specialist, so i think that will be the next step for me. Because, as I'm sure you know, it wrecks your life, can't sleep, can't stay awake, can't work etc etc. Im so over it!!
As for being epileptic, I had seizures before the surgery, this is how they found the AN (you would have thought all the neurologist would have pick it up in the past cause it was slow growing and had been there for years). I have had 2 EEG's both showing nothing wrong but they think it might be frontal lobe epilepcy which doesn't show up on an EEG, but I don't know. I think it was caused by the tumour but who knows. I need to be on the medication just in case.
So the GP and Neurologist are playing around with different epileptic meds to see if that will be any help.
How long ago was you AN removed and was it by surgery?
Thanks for you help Janet
Fleur