Author Topic: when does the numbness go away?  (Read 7443 times)

brasher

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when does the numbness go away?
« on: March 11, 2007, 11:07:58 pm »
hi out there!

i know the left side of my head has been through a lot recently.i understand that it could be 6 months or longer for the graft procedure to start combatting the paralysis. i am just curious when i can expect to start having feeling in my face?

hope everyone is doing ok

tony
6.5cm AN;   1/23/07
translab prceedure; house ear clinic; Dr. Slattery and Dr. Schwartz
facial nerve severed with complete removal of tumor.
gold eye weight;2/21/07-Dr Roberts
12-7 nerve anastomosis; 3/1/07, Dr Slattery
happy to be here; recovering well

Jeanlea

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Re: when does the numbness go away?
« Reply #1 on: March 12, 2007, 08:27:24 am »
Hi Tony,

I'm 18 months post-op and I still have facial numbness.  Some days it feels like there may be areas where it is lessening.  I've had friends who've had numbness from other things and they said it can take up to two years.  I don't think anyone knows.  I have sort of gotten used to it.  Hope yours goes away quicker.

Jean
translab on 3.5+ cm tumor
September 6, 2005
Drs. Friedland and Meyer
Milwaukee, WI
left-side facial paralysis and numbness
TransEar for SSD

nancyann

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Re: when does the numbness go away?
« Reply #2 on: March 12, 2007, 10:05:50 am »
Hi Tony  (& Jean - always a pleasure !):  I don't have the facial numbness (the way I checked was to pinch, slap that side of my face & I can feel it - nuts, huh?).
                                                        Since your nerve was severed, as was mine, I am having routine facial EMGs - the 1st one was 4 months post op, no nerve
                                                        generation; the 2nd one was 7 months out, showed 10-15% nerve generation, but still no movement.  I'll be having my
                                                        3rd EMG 5/29.   Hopefully your docs will order the EMGs - it's routine to do them pre nerve graft.  If they show nerve
                                                        generation they'll hold off on the nerve graft.
                                                        I was scared re: the graft, didn't want any more surgeries, but since hearing that Denise & Chris are having great results,
                                                        I'm feeling better about it.
Take care Tony & nice to meet you, Nancy
                           
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

brasher

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Re: when does the numbness go away?
« Reply #3 on: March 13, 2007, 01:45:53 pm »
hey nancy,

no one has mentioned facial EMG's to me yet. ??
    the docs were very happy with the results of the graft, however. so hopefully i will see good results someday.
man, that surgery hurt though, i was in quite a bit of pain after that one!
i am assuming that the numbness will go away before i am able to move that side of my face yeah?
6.5cm AN;   1/23/07
translab prceedure; house ear clinic; Dr. Slattery and Dr. Schwartz
facial nerve severed with complete removal of tumor.
gold eye weight;2/21/07-Dr Roberts
12-7 nerve anastomosis; 3/1/07, Dr Slattery
happy to be here; recovering well

Obita

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Re: when does the numbness go away?
« Reply #4 on: March 13, 2007, 03:17:34 pm »
Hi Tony:

I wanted to let you know that I saw Denise on Sunday after not seeing her for two months.  WOW was all I could say and I couldn't quit hugging her.  The results of the 12/7 jump are incredible.  It was a long wait for things to start happening, but it did happen.   ;D  Boy, did it happen!!

Hang in there Tony,

-Kathy
Kathy - Age 54
2.5 cm translab May '04
University of Minnesota - Minneapolis
Dr. Sam Levine - Dr. Stephen Haines

nancyann

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Re: when does the numbness go away?
« Reply #5 on: March 13, 2007, 05:07:43 pm »
Hi Tony:  I didn't realize you had the 12/7 jump already !!!!
              Well, that changes things a bit, doesn't it?
             The only reason I'm getting the EMGs is as a prerequisite to the 12/7.
              I don't know if you would have an EMG AFTER the jump surgery.
              Maybe Denise or Chris would know.
              I'll keep fingers, toes crossed that you have the same great results as the rest of the crew.
              You're ahead of me buddy, I'm still in the 'pre- 12/7 jump' phase.

All the best to you & the others awaiting 'full recovery',  Nancy

ps:  hey Joef:  If you read this, have you been to your post surg. appt. yet ??  Wondering what was said re: further surgery or wait.....
« Last Edit: March 13, 2007, 05:13:37 pm by nancyann »
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Kathleen_Mc

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Re: when does the numbness go away?
« Reply #6 on: March 17, 2007, 12:53:00 am »
I personally have remained with the numbness, after all these years, and none of the repairs I've had to my face have made any difference to that.
Kathleen
1st AN surgery @ age 23, 16 hours
Loss of 7-10th nerves
mulitple "plastic" repairs to compensate for effects of 7th nerve loss
tumor regrowth, monitored for a few years then surgically removed @ age 38 (of my choice, not medically necessary yet)