Hey guys. I've got some good and bad news to share.
I had my 18 month MRI and hearing test down at Stanford about a month ago. My hearing is virtually the same as it was pre-CK (word recognition 100%). Dr. Chang was pleased with the MRI and said my tumor was stable. I was promoted to once a year checkup status. So, yay!
HOWEVER, two days ago I woke up feeling rather woozy. I'd taken 1/2 Ambien the night before, so I thought I was just tired and that I'd get over it. In spite of the feeling, I went to play in a golf tournament (and, absurdly, played pretty well!). The next day (yesterday) I was a bit more dizzy. Went to see my regular doctor who ruled out anything too serious. Called the folks down at Stanford who tell me at 18 months I'm still in the window of post-treatment symptoms. They said to try an anti-inflammatory dose of ibuprofin for a couple days and if that doesn't work they'll put me on a short course of Decadron.
I'm a bit down because I never had any vestibular issues before. I did have hearing distortion that lasted a few days, and a feeling of intense head pressure for which I was eventually prescribed Decadron. That was very shortly after CK and I've been symptom-free ever since. So this episode is a big surprise for me.
It's classic positional vertigo. If I hold my head still, I'm OK. Reading is not a problem. But if I move my head rapidly, everything starts spinning. Yuck.
Have any of you experienced this type of thing, and if so, how long did it last? I don't really want to do the Decadron again (kind of made me a *****), but will do so to stop the spinning!
