« previous next »
Pages: [1]

Author Topic: NEUROMUSCLULAR FACIAL RETRAINING  (Read 2393 times)

FAITH40

  • Jr. Member
  • **
  • Posts: 65
NEUROMUSCLULAR FACIAL RETRAINING
« on: February 03, 2008, 09:47:20 am »



GOODMORNING TO ALL ;)

I HAVE NOT READ ANY POSTINGS ON NEUROMUSCULAR FACIAL RETRANING.. HAS ANYONE HEARD OF THIS? I HAVE AN APPT. THIS WEEK WITH A PHYSICAL THERAPIST THAT SPECIALIZES IN THIS AREA OF THERAPY. YOU CAN GOOGLE THIS AND GET INFORMATION ON WHO IN YOUR AREA SPECIALIZES IN THIS. THERE IS A CLINIC IN ATLANTA, GA. CALLED ATLANTA EAR CLINIC. A WOMAN BY THE NAME GAYE W. CRONIN OTD. OTR. SPECIALIZES IN FACIAL RETRAINING AND SUPPOSE TO BE GREAT WITH AWESOME SUCCESS!! GOOGLE HER !


LOOKING FORWARD TO THIS!

TAMMI ;)

Logged
2.8 CM AN NASHVILLE,TN. DR. REID THOMPSON AND DR. DAVID HAYNES REMOVED DEC. 4TH- 07 TRANSLAB - 16 1/2 HOUR SURGERY - STRETCHED FACIAL NERVE- FACIAL PARALYSIS (HEALING) 100% HEARING LOSS (AN SIDE)
4 DAY HOSPITAL STAY ! DOING GREAT!

nancyann

  • Hero Member
  • *****
  • Posts: 2251
  • carpe diem
Re: NEUROMUSCLULAR FACIAL RETRAINING
« Reply #1 on: February 03, 2008, 12:10:38 pm »
Hi Tammi, nice to meet you.   Neuromuscular facial retraining is basically for those who had facial paralysis post surgery, & are beginning to have
movement return.   As soon as movement starts (I was told) is when you go for this training.   It's suppose to stop/decrease synkenesis from
occuring.    I never regained movement so I never had the facial retraining.
Logged
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

FAITH40

  • Jr. Member
  • **
  • Posts: 65
Re: NEUROMUSCLULAR FACIAL RETRAINING
« Reply #2 on: February 03, 2008, 12:28:10 pm »
HI NANCY,


THANK YOU FOR THE COMMENT! ;) I  AM ONLY 7 1/2 WEEKS POST OP, AND HAVE HAD GREAT SUCCESS SO FAR WITH SOME MOVEMENT AND SPASMS. I AM HOPING THIS LADY CAN WORK MAGIC!! ;) SHE SAYS EVEN IF YOU HAVE HAD NO MOVEMENT FOR YRS IT IS POSSIBLE!! YOU MAY WANT TO READ UP ON HER IF YOU HAVE HAD NO MOVEMENT. I AM GRASPING AT ANY STRAW!!!

THERE SURE SEEMS TO BE ALOT OF PEOPLE IN THIS AREA THAT HAVE AN ACOUSTIC NEUROMA.. HMMM MY DR. WAS ON THE NEWS TALKING WITH THEM ABOUT THIS AREA.  STRANGE!! ??? ???

TAMMI

Logged
2.8 CM AN NASHVILLE,TN. DR. REID THOMPSON AND DR. DAVID HAYNES REMOVED DEC. 4TH- 07 TRANSLAB - 16 1/2 HOUR SURGERY - STRETCHED FACIAL NERVE- FACIAL PARALYSIS (HEALING) 100% HEARING LOSS (AN SIDE)
4 DAY HOSPITAL STAY ! DOING GREAT!

nancyann

  • Hero Member
  • *****
  • Posts: 2251
  • carpe diem
Re: NEUROMUSCLULAR FACIAL RETRAINING
« Reply #3 on: February 03, 2008, 01:04:45 pm »
Tammi:  I just sent the Atlanta Ear Clinic a message re: my situation.  Well, we'll see what they say, can't hurt to try. 
Thanks for the information,   Nancy
Logged
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

FAITH40

  • Jr. Member
  • **
  • Posts: 65
Re: NEUROMUSCLULAR FACIAL RETRAINING
« Reply #4 on: February 03, 2008, 01:20:53 pm »
NANCY,

GREAT!!!!! ;) ;) WE HAVE TO DO WHATEVER WE CAN TO SUCCEED AND OVERCOME THIS THING THEY CALL "ACOUSTIC NEUROMA" !!!!! I FEEL GOOD ABOUT THIS WOMAN!!! ;)

FAITH AT WORK!!!

TAMMI ;)
Logged
2.8 CM AN NASHVILLE,TN. DR. REID THOMPSON AND DR. DAVID HAYNES REMOVED DEC. 4TH- 07 TRANSLAB - 16 1/2 HOUR SURGERY - STRETCHED FACIAL NERVE- FACIAL PARALYSIS (HEALING) 100% HEARING LOSS (AN SIDE)
4 DAY HOSPITAL STAY ! DOING GREAT!

Pembo

  • Hero Member
  • *****
  • Posts: 644
Re: NEUROMUSCLULAR FACIAL RETRAINING
« Reply #5 on: February 03, 2008, 02:38:18 pm »
Tammi, I saw Todd at UPMC for facial retraining. I did have some movement and with his help I improved from 30 - 65%. He uses biofeedback training. It was a great experience. I learned a lot. However be prepared to stare at face in a mirror for lengths of time. That was difficult emotionally.
Logged
Surgery June 3, 2004, University Hospitals Cleveland, BAHA received in 2005, Facial Therapy at UPMC 2006

FAITH40

  • Jr. Member
  • **
  • Posts: 65
Re: NEUROMUSCLULAR FACIAL RETRAINING
« Reply #6 on: February 03, 2008, 02:50:57 pm »
HI PEMBO,

THANX FOR THE WARNING!!! ;) I LOOK IN THE MIRROR CONSTANTLY ALREADY!!!
 ;D

DID YOU GO RIGHT AFTER SURGERY OR AWHILE LATER?

TAMMI ;)
Logged
2.8 CM AN NASHVILLE,TN. DR. REID THOMPSON AND DR. DAVID HAYNES REMOVED DEC. 4TH- 07 TRANSLAB - 16 1/2 HOUR SURGERY - STRETCHED FACIAL NERVE- FACIAL PARALYSIS (HEALING) 100% HEARING LOSS (AN SIDE)
4 DAY HOSPITAL STAY ! DOING GREAT!

marg

  • Sr. Member
  • ****
  • Posts: 286
Re: NEUROMUSCLULAR FACIAL RETRAINING
« Reply #7 on: February 08, 2008, 10:43:59 pm »
Hi Tammi,
    I am looking for someone in the western Washington area who does this kind of training.   I had my surgery in May and about   5  1/2 months later I started having real problems with the nerves connecting up wrong.  My eye closes when I eat - and also some when I am speaking.... I don't really want to travel all the way to Atlanta .... but I can't find anyone here.  If you hear of anyone trained in my area I would really appreciate the info.  I live in southwest Washinton - so even someone in Portland, OR would be close enough.
Thanks,
Margaret
Logged
Marg 
 4 mm  AN removed .. middle fossa   5/07 OHSU  Dr. Delashaw
AN scraped off facial nerve & balance nerve removed
 MRI  follow up showed AN gone ... thank you God
Some facial paralysis- . SSD weeks after surgery.  Trans-Ear Nov.2007 ... it really helps !

SusanT

  • New Member
  • *
  • Posts: 23
Re: NEUROMUSCLULAR FACIAL RETRAINING
« Reply #8 on: February 09, 2008, 01:21:54 pm »
Tammi,
I live in SC and drive 3 1/2 hours to receive Occupational Therapy from Gaye. I had Gamma Knife in June 07 i n Augusta. 3 months post GK, I developed facial paralysis. I have been going to Atlanta since Dec 07. She is helping me with my face and my balance. I am getting some return, but still have a ways to go. I make the trip monthly. I even saw the doctor that she works with for a consultation last month. It was well worth the time. She is an encouraging therapist and I highly recommend her. Good luck !
Susan
Logged
Pages: [1]
« previous next »