Great Website for Migraine Sufferers

[Captain Deb]

Hi fellow headachers,

Here is a great website on migraines, which many of us have.  "But I don't have a migraine, I just have a pounding one-sided headache 16 months after AN surgery!"  Yes, dear, you certainly DO have a migraine.  Triggered by surgery and not genetic or hormonal, but still a migraine.

http://www.healthcentral.com/migraine/

If you subscribe to this, like I do, you get an updated newsletter once a week or so with tons of great information, patient stories, medication and product reviews and more.

Cheers!

Capt Deb

[cin605]

I am going to check this out Deb.....Yup,thats me except i am 27 months out.....vision throbbong w/ my "head pain" one side and up my head down my neck...ARGHHHHHHHH!

[Captain Deb]

Absolutely, do check it out.  There was an article on trauma-induced migraines a while back--I save all the back issues.  The problem with us is that triptans like Imitrex don't work that well on ours.  I self injected (with a manual syringe and not one of those little injecta-pens) Imitrex for almost 3 years (at $100 a vial for 6 mg--usually took 3 mg for it to work) before I figured it out that I was flushing my $ down the toilet. $45 a headache plus using that much Imitrex is not all that good for you. There is so much information on this site.  I haven't come across an AN patient story yet.  Maybe I'll get to be the first one!

Capt Deb

[yardtick]

Great article, I had a migraine with the aura on Friday and I can tell you first hand the intensity of the headache because of the nerve damage from surgery to debulk my facial neuroma is enough to make anyone cry.  No wait crying hurts too much     I was in a Hallmark Card store looking for some inspirational and cute friendship cards for my girlfriend Susie, she has lung cancer and was told she has 6 months maxs.  The aura blinded me and with my wobbly balance my girlfriend Lucy had to escort me out of the store, place me in her car and drive me home. 
Headaches on the whole are very brutal, I've been a migraine sufferer since I was 12 or 13 years old.  When you combine a migraine, facial pain and the headache pain I've been left with for the last 4 years, I have no words to describe what I am feeling or the despair that runs through my mind.  I am thankful all of these factors do not occur all that often, maybe half a dozen times a year. 

Anne Marie

PS Wouldn't you know it the migraine pain is also on the left side!!!  Too bad I can't win a lottery

[Captain Deb]

Miss Tick,
Have you tried Botox yet? Swear to God it would work for you!!! Is it approved in Canada for migraine yet?  I titotally swear by it.  It was one of the first thing my neuro suggested when I began seeing him but my insurance would absolutely not approve it.  If I know then what I know
now I would have gone ahead and paid for it myself. It really works for me.  The migraine does not spread all over the left side of my head but stays in one place that I can ice down and get some relief.  I've been taking 2 Fioricet with it and I'm down for a while, but not laying in bed crying all day!

Hugs to your lil old neck!

Capt Deb

[Captain Deb]

Did I really write "titotally?" Hahahahahaha

Capt Deb

[Lizard]

Thanks for sharing the link, I'm totally going to check this out.  I'm heading back to the Dr to see if we can try some other types of blocks for the pain...trimeng. and upper cervical facet....keeping them crossed!
Thanks again,
Liz

Anne Marie, so sorry your headaches are so severe, you would think over time they might start to get better?  Too bad.  Hang in there.

[yardtick]

The headaches are still there, on a scale of 1 to 10 they range between a 3 or 4.  Last Thursday with all of the factors of a blinding migraine the pain was off the charts.  Now today I'm hovering around a 6 or a 7.  I think since today is my 4 year anniversary the old nerves decided to party    I made dinner but that's about it.  I'm not going anywhere real soon so I can rest and take it easy, no I lie I'm off to the Dominican Republic for a week to relax and celebrate our 26th wedding anniversary. We leave next Friday for a week, our anniversary is Sept 22 and for the moment I have drugs so I'm coping.

I see the neurologist again in Nov so I will bring up the botox.  I have descent benefits, they just paid $748.00 for 400 Lyrica capsules and if they do not cover the botox treatment I will pay out of pocket.  It would be nice to have absolutely no pain, even if its short lived.  It would be so nice to totally smile, laugh from my belly and yawn without a headache.

I loved "titotally" totally!! 

Anne Marie

[Captain Deb]

Oh, my dear, the Botox is NOT short lived!  It is cumulative and I go every 3 months and the relief gets better and better.  I am going to hereby be a Botox advocate for any headachers who post here.  At almost 8 years out, I have seniority!!!!

Capt Deb