Good to hear from you, JB. I do remember you from the meeting! I hope you are doing well.
The U of Va. where my husband had the GK has asked us to send them a copy of the MRI so they can review it, so that's what we're going to do for now. We feel pretty comfortable with the doctors we've dealt with at Duke and U Va. We'll see what they say. For me it's just difficult to deal with the possibiity of having to face this again, after already doing two treatments. Hopefully that won't be necessary.
Unfortunately we haven't had another Charlotte meeting because of assorted things my husband and I have had going on in our lives, athough we still live in the Charlotte area. We talked about maybe having another meeting this summer. One of the other leaders suggested I find a co-leader. If you think you might be interested, let me know, send me an e-mail. Helping others with An has been rewarding, but unfortunately I have a lot of things competing for my time.
