Author Topic: Has anyone had hearing/balance improve after CyberKnife treatment?  (Read 2014 times)

Tumbleweed

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Hi, everyone:

Has anyone had hearing or balance improve after CyberKnife treatment? How soon after treatment? To what degree did it improve?

Many thanks,
Tumbleweed

L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

Lorenzo

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Re: Has anyone had hearing/balance improve after CyberKnife treatment?
« Reply #1 on: June 19, 2008, 11:42:19 am »
HI Tumbleweed,

haven't heard of anybody, but good question! Mine got worse by about 5%. Was useless before anyway...

Ciao, Lorenzo
CK, Stanford, Drs Chang and Hancock, Dec 04,
doing great now.

ppearl214

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Re: Has anyone had hearing/balance improve after CyberKnife treatment?
« Reply #2 on: June 19, 2008, 11:56:05 am »
Was lucky.... 5 doses/days of CK... my hearing remained 100% intact (I have over 80% serviceable with word recognition around 94%.)

As for my balance, I have a 2fold issue.... AN and Chiari. Both contribute to the great impersonation of a drunk that I do.... but, for the most part, I know the AN throws it off at night, esp. in darkened areas..... (ie: walking the dog outside at night). 

Hang in there!
Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

jb

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Re: Has anyone had hearing/balance improve after CyberKnife treatment?
« Reply #3 on: June 20, 2008, 12:13:29 am »
Mine got worse before it got better, but was never a serious problem.  I think my hearing is probably still a little worse than before CK, mostly at high frequency.  Balance is probably as good or a little better.  Nighttime walking was a little unstable for awhile, but doesn't seem to be a problem now at 10 mos. post-CK.
2 cm right-side AN, diagnosed July 2006
Cyberknife at Georgetown Univ. Hospital, Aug 2007
Swelled to 2.5 cm and darkened thru center on latest MRI's, Dec 2007 and Mar 2008
Shrinking! back to 2 cm, Aug 2008
Still shrinking (a little), I think about 1.7 cm now, Aug 2009

fbarbera

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Re: Has anyone had hearing/balance improve after CyberKnife treatment?
« Reply #4 on: June 20, 2008, 12:19:37 pm »
Hearing has remained unaffected.

Balance has improved in the sense that before treatment, I would have acute episodes of imbalance.  Now I just have very minor, almost imperceptible sensation of imbalance that can get a little worse at night or when I don't get enough sleep.  Hoping for continual improvement on this front.