« previous next »
Pages: [1]

Author Topic: AN chat  (Read 3014 times)

sher

  • Full Member
  • ***
  • Posts: 173
AN chat
« on: July 15, 2008, 10:23:30 pm »
Has anyone ever been to the AN chat room
It is www.anworld.com/chat/
Logged
1.2cm x 0.6 cm extracanicular component (7 mm) 05/08/08
MRI in AUG 08  showed 30 % growth
Having CK 9/30, 10/1 and 10/2/08
1/12/08 MRI shows swelling

Jeanlea

  • Hero Member
  • *****
  • Posts: 799
Re: AN chat
« Reply #1 on: July 15, 2008, 10:47:10 pm »
Thanks for letting us know about it.  I checked it, but nobody else was there.  I'll have to check back from time to time.

Jean
Logged
translab on 3.5+ cm tumor
September 6, 2005
Drs. Friedland and Meyer
Milwaukee, WI
left-side facial paralysis and numbness
TransEar for SSD

Cheryl R

  • Hero Member
  • *****
  • Posts: 1824
Re: AN chat
« Reply #2 on: July 16, 2008, 07:40:00 am »
The AN chat room has never seemed to get going much.        There are many of us who do the "mailing list" which is when someone posts and then it goes to the email of all who are signed up.            Some days we do several and other days almost none.                The home page does gives good info about ANs.
                                               Cheryl R
Logged
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

Jim Scott

  • Hero Member
  • *****
  • Posts: 7241
  • 1943-2020 Please keep Jim's family in your hearts
Re: AN chat
« Reply #3 on: July 16, 2008, 12:00:58 pm »
Speaking strictly for myself, I never utilize internet chat rooms because (a) I'm a two-finger typist and cannot keep up with most 10-finger typists and (b) I have no interest in hacking up perfectly good words to save time and/or keystrokes and by doing so, feel like I'm writing in an ersatz language, one that doesn't require much thought or offer any real beauty.  But that's just me. 

For those who like to 'chat'  in real time, via the internet, feel free to do so on the AN Chat Room page.  I'll be over here if you need me.  CUL8R.  :)

Jim
Logged
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

ppearl214

  • Administrator
  • Hero Member
  • *****
  • Posts: 7449
  • ANA Forum Policewoman - PBW Cursed Cruise Director
Re: AN chat
« Reply #4 on: July 16, 2008, 12:22:57 pm »
I don't IM, don't Yahoo, AIM or any of the chats.... when I can pick up the phone for verbal, real-time communications as well! :)

Phyl
Logged
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

leapyrtwins

  • Hero Member
  • *****
  • Posts: 10826
  • I am a success story!
Re: AN chat
« Reply #5 on: July 16, 2008, 05:22:32 pm »
I'm with Phyl.  I don't Yahoo, IM or chat either.

Phone, email and this forum are about it for me.

Jan
Logged
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

sabuck

  • Jr. Member
  • **
  • Posts: 77
    • Buck & Sons Landscape Service, Inc.
Re: AN chat
« Reply #6 on: July 16, 2008, 06:23:27 pm »
I just went there too and I was all by myself.  :-\ .......... :'(
Logged
Approx. AN 2.5 cm prior to surgery on 10/7/07)
(Cerebellopontine Angle Tumor)
The Ohio State University Medical Clinic (Drs. Brad Welling & John McGregor)
SSD post op - left side
BAHA surgery 4/25/08 Dr. Brad Welling 7/3/08 for Baha use!

Mark

  • Hero Member
  • *****
  • Posts: 676
Re: AN chat
« Reply #7 on: July 16, 2008, 06:34:38 pm »
I guess count me into the group with Jim, Phyl and Jan. participating in this forum is about as close as I would get to"chatting". This environment seems "real time " enough for me to answer people's questions and I would prefer the phone if somebody wanted a more in depth conversation.

Mark
Logged
CK for a 2 cm AN with Dr. Chang/ Dr. Gibbs at Stanford
November 2001

sgerrard

  • Hero Member
  • *****
  • Posts: 3475
Re: AN chat
« Reply #8 on: July 16, 2008, 07:16:17 pm »
Quote from: Jim Scott on July 16, 2008, 12:00:58 pm
I have no interest in hacking up perfectly good words to save time and/or keystrokes and by doing so, feel like I'm writing in an ersatz language, one that doesn't require much thought or offer any real beauty.

wut r u tawkn bout?

k bye
Logged
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Omaschwannoma

  • Hero Member
  • *****
  • Posts: 777
  • Life is a journey, not a destination
Re: AN chat
« Reply #9 on: July 17, 2008, 06:25:42 am »
I don't do "windows"!
Logged
1/05 Retrosigmoid 1.5cm AN left ear, SSD
2/08 Labyrinthectomy left ear 
Dr. Patrick Antonelli Shands at University of Florida, Gainesville, FL
12/09 diagnosis of semicircular canal dehiscence right ear

leapyrtwins

  • Hero Member
  • *****
  • Posts: 10826
  • I am a success story!
Re: AN chat
« Reply #10 on: July 17, 2008, 07:54:02 pm »
Quote from: sgerrard on July 16, 2008, 07:16:17 pm
Quote from: Jim Scott on July 16, 2008, 12:00:58 pm
I have no interest in hacking up perfectly good words to save time and/or keystrokes and by doing so, feel like I'm writing in an ersatz language, one that doesn't require much thought or offer any real beauty.

wut r u tawkn bout?

k bye

So, Steve, can we assume you do a lot of texting in your free time? :D

Bucko -

sorry you were all alone.  Don't forget we are all here  for you  ;)

Jan
Logged
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

catherine

  • Newbie
  • *
  • Posts: 1
Re: AN chat
« Reply #11 on: July 18, 2008, 10:16:13 pm »
I am a newbie after recently being diagnosed with AN and would love to chat with someone about the gamma knife treatment which has been recommended.  After reading the risk factors, I am feeling rather uneasy about proceeding with this procedure. Is there anyone who would be willing to chat with me about this?  If yes, when would be a good date and time?
In gratitude, Catherine
Logged
Pages: [1]
« previous next »