Hi Debra, Welcome to the forum, and please do get the written information from the ANA 877-200-8211. They will also send you a Willing to talk list that had a contact of the Dallas area person (and also a local support group leader). Her name is Pamela Denesuk who was very helpful to me in our conversation. She, and the ANA could refer you to local Phys., although a well connected person in Med community came up with "consult with Dr. Duke Samson at Southwestern Med School of UT. His phone # is2 14 645 2300. He has been professor of Neurosurgery for several years, and may be partially retired, but he can steer her to the proper specialists if he can't do it." I personally didn't consult with them because I developed a trusting relationship with my Drs. (Kemper and Kemper) here in Austin, and had extremely successful surgery (no facial nerve compications, no infections, no regrowth, etc.) I had a different approach than you are considering, however, but still will convey ph #'s (mine, Pam's) if you wish.
Good Luck in your quest, looks like you have been in similar scenario before. You came through that, and will this too.
Julie Erlon
(Hi Julie... great info you share and thank you. Please know that posting personal contact info -- ie: your personal email address -- is not allowed on the site in efforts to protect you from spammers/phishers, etc. thus, I removed your email address. All can reach you here on PM/Private emails where it is suggested you share your personal contact there. Thanks for understanding. Phyl)