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Author Topic: One Year Post-Treatment Update  (Read 1979 times)

fbarbera

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One Year Post-Treatment Update
« on: August 23, 2008, 10:18:01 am »
Good morning all.  Wanted to post a quick update as I received a terrific report from Stanford on my 1 year MRI.
My tumor has shrunk from its size six months ago (when it was swollen from the effects of Cyberknife) and is now the same size -- or maybe even a bit smaller -- than it was on the date of treatment a year ago.  The tumor appears much darker on the MRI films -- a sure sign of necrosis.  Excellent news all around.

For the past several weeks, I've had a recurrence of balance episodes.  I spoke with Dr. Chang about these symptoms and he reminded me that the tumor is still responding to treatment and that symptoms will generally evolve in the 18 - 24 months after CK treatment. 

Overall, the report was very positive.  I've provided some more details in the "post-treatment" section of my website below.

Best wishes to all.

Francesco

 
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yardtick

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Re: One Year Post-Treatment Update
« Reply #1 on: August 23, 2008, 10:31:49 am »
Way to go Francessco,

There's a lot of partying going on....have to join DHM....lots of good stuff going on there!

Anne Marie
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

ppearl214

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Re: One Year Post-Treatment Update
« Reply #2 on: August 23, 2008, 10:44:59 am »
I am SOOOO  loving the great news around here! Onward and upward to that tumah' fugly death! Great news and congrats!

My 2-1/2 yr follow up is this Monday... .rub some good luck vibes on me, will ya?  :)

Congrats Francesco!!!!!!!!!!!!
Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

NL

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Re: One Year Post-Treatment Update
« Reply #3 on: August 23, 2008, 11:57:57 am »
Francesco,

That is fantastic news! Congratulations!

Phyl - I'll be sending lots of good thoughts to you for your follow up on Monday!

Nancy L
« Last Edit: August 24, 2008, 10:33:16 am by NL »
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1.6 cm left AN diagnosed Oct. '07
1.9 cm on 2nd MRI, May '08
Retrosigmoid surgery at House Clinic/St. Vincent's on 8/6/08
(no post-op dizziness, nausea, facial or balance issues)
Thankful for a fantastic team of doctors - Dr. Rick Friedman, Dr. Marc Schwartz, & Dr. Michael Stefan

sgerrard

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Re: One Year Post-Treatment Update
« Reply #4 on: August 23, 2008, 05:22:06 pm »
Francesco,

Another post of good news, keep 'em coming! It sounds like a good MRI result. Hopefully the balance issue will resolve within the next 6 months - it just seems like it ought to. :)

Take care and have a great second year,

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

mk

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Re: One Year Post-Treatment Update
« Reply #5 on: August 23, 2008, 05:49:37 pm »
Congratulations Francesko! I am really happy for you.

Marianna
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GK on April 23rd 2008 for 2.9 cm AN at Toronto Western Hospital. Subsequent MRIs showed darkening initially, then growth. Retrosigmoid surgery on April 26th, 2011 with Drs. Akagami and Westerberg at Vancouver General Hospital. Graduallly lost hearing after GK and now SSD but no other issues.

leapyrtwins

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Re: One Year Post-Treatment Update
« Reply #6 on: August 23, 2008, 05:52:35 pm »
Fantastic news, Francesco!!!  ;D

I hope the coming year brings even more necrosis!

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Tumbleweed

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Re: One Year Post-Treatment Update
« Reply #7 on: August 23, 2008, 10:37:14 pm »
Congratulations, Francesco! That's terrific news! I'm really happy for you.

BTW, did Stanford give you a copy of your MRI and the associated text report to view and keep for yourself? And did you have a follow-up audiogram? If so, has your hearing gotten any worse since treatment 1 year ago?

Best wishes,
Tumbleweed
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

Syl

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Re: One Year Post-Treatment Update
« Reply #8 on: August 24, 2008, 08:43:50 am »
Francesco: Congratulations on the good news.

Phy: Whishing only the best for you on Monday.

Syl
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1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

Debbi

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Re: One Year Post-Treatment Update
« Reply #9 on: August 24, 2008, 12:08:56 pm »
Francesco -

Brilliant!  Wonderful news - congratulations!  Necrosis rocks!

Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com
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