Author Topic: Lesson learned.....  (Read 3696 times)

CROOKEDSMILE

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Lesson learned.....
« on: October 14, 2008, 08:12:05 am »
My son who is 6 and I were sitting in the car the other day and I was looking at my wonky smile in the mirror when I asked him how my smile looked! I didn't know that I was about to get an indepth lesson from him on "How to smile" He so sweetly said......"Mom, look. This is really easy to do. Watch me....(as he grinned from ear to ear) Now you do it. (I did my best but as you would guess the left side (paralyzed side) didn't cooperate very well with the mouth turning downward) No, no, no he said. You're supposed to make this corner go up like the other. You're making yours go down. Come on Mom..Try again. See watch me do it again. Watch closely he said. This went on for a good 20 minutes and I couldn't help but laugh because he was so patient and sweet even though I was not able to follow his "simple" instructions. He was not about to give up on me until I finally said...how about I try this again some other time.
 You know...I learned a lesson that day. If my 6 year old isn't willing to give up on me then why should I?
My dear Rivers who I adore.
Angie

mimoore

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Re: Lesson learned.....
« Reply #1 on: October 14, 2008, 08:39:58 am »
That is so sweet. River loves you, we can learn so much from children.
Okay here's another funny. It is picture day and I am preparing my kindergarteners for pictures. "Okay so smile big (using my fingers like a peace sign to make my mouth look like a smile), and show your beautiful teeth". We go down to the gym and the photographer is setting us all up (yep me too - YIKES) and then she says "1-2-3 smile" and then she starts laughing. I look at my students and there they are holding their mouths up like I had shown them because of course my smile is asleep. I look at them and think they are the sweetest things and how well they followed my directions exactly and then say "Okay now without your fingers". Kids are so adorable.
Michelle  ;D
The photographer said "Oh you have bells palsy, my boyfriend had it. Don't worry it will be gone in 4-6 weeks." I tried to smile and didn't have the heart to tell her it what it really was and that it had been this way for four months.
Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

MKLady

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Re: Lesson learned.....
« Reply #2 on: October 14, 2008, 10:16:49 am »
Oh my gosh, those are the sweetest stories :)  I've got tears in the eye that is still able to make tears.  Thanks for sharing. 

Susan
Translab 4/10/2008; 1.3 cm; total facial paralysis left side.

andrea in slc

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Re: Lesson learned.....
« Reply #3 on: October 14, 2008, 02:01:29 pm »
Awww, too darn sweet! Makes you want to give them all a big hug. Kids can be so healing without even knowing it!

My 5-year-old today was talking about the mint M&M's that they only have around Thanksgiving and Christmas and how much I like them. I said "Dang, if I have my surgery before Christmas, I won't be able to get any!"  She said "Don't worry Mommy, I'll make sure you get some. Dad and me will take care of you."   ;D ;D ;D ;D  Such a sweetheart! And well-trained to in regards to chocolate.  ;)

sgerrard

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Re: Lesson learned.....
« Reply #4 on: October 15, 2008, 12:31:16 am »
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Omaschwannoma

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Re: Lesson learned.....
« Reply #5 on: October 15, 2008, 06:42:42 am »
I love this post and reading all the comments by children! 

Thanks all!
1/05 Retrosigmoid 1.5cm AN left ear, SSD
2/08 Labyrinthectomy left ear 
Dr. Patrick Antonelli Shands at University of Florida, Gainesville, FL
12/09 diagnosis of semicircular canal dehiscence right ear

CROOKEDSMILE

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Re: Lesson learned.....
« Reply #6 on: October 15, 2008, 06:43:37 am »
Another one...
I was 2 weeks post op and my face was paralyzed, had a patch over my eye and had a paralyzed swallowing nerve with a nasogastric tube down my nose into my stomach with the tube hanging down and attached to my shirt to prevent it from being pulled out accidently. I looked like I had just been in a serious car accident. I was not able to walk good and shuffled like I had a stroke. It was summertime and my two boys wanted to go to the pool so I thought it would do me some good to get some sunshine. The moment I walk into the country club pool area and lady with her mouth bandaged with tape says "I just went to my plastic surgeons office and had permanent lipliner put on hence the bandages...(and then said) "What did you have done?"......................(obviously the bandage wasn't on tight enough over her mouth!) I couldn't believe this lady! I guess she thought if I had seen a plastic surgeon for something that she wanted to make sure that she NEVER visited my surgeon! Anyway.......needless to say I have learned more good lessons from my kids during this terrible time than I have from adults~........that is except for YOU GUYS which have been GREAT! Thanks for your support and encouragement.
Angie

jazzfunkanne

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Re: Lesson learned.....
« Reply #7 on: October 15, 2008, 07:53:28 am »
really makes me sick when i here of people having work  done to there face, esp when they dont need it, they dont know there living.
over 4.5cm AN removed dec 06

hannie

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Re: Lesson learned.....
« Reply #8 on: October 15, 2008, 09:04:18 am »
I'm so glad you have such wonderful children who are so understanding and give you so much hope and happiness. I was tearing up too!!

Jim Scott

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Re: Lesson learned.....
« Reply #9 on: October 15, 2008, 11:13:23 am »
Angie:

Thanks for a wonderful story about your six-year-old trying to 'help' you 'learn' how to smile.  It's very poignant and certainly touches us all, especially those who've shared the joy of raising children.   :)

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

lori67

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Re: Lesson learned.....
« Reply #10 on: October 15, 2008, 11:42:45 am »
Kids are so patient with us, aren't they?

My 5 year old has been like a little mother hen since my surgery and is always telling me "your eye is looking pretty good today, Mom" or something along those lines.

But I got the biggest laugh last night when my 2 year old and I were looking at a catalog that we got in the mail (no, still no newsletter, but lots of catalogs) and we were looking at the pictures.  She pointed to something and my AN brain went blank and I couldn't think of what it was called.  I hesitated for a minute and then it finally came to me.  She put her hands on my cheeks and said "you're so smart".  I thought I was going to fall off the chair I was laughing so hard.

Michelle - I think it would have been great to get a picture of all of you with your fingers holding your lips up!  That is so funny!

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

calimama

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Re: Lesson learned.....
« Reply #11 on: October 15, 2008, 12:03:42 pm »
What a beautiful story Angie! thanks for sharing... it made my day.

Left 2.9cm CP Angle AN discovered Jan 2008. Retrosig surgery June 2, 2008 Toronto, Canada. Facial paralysis and numbness, double vision (4th nerve), SSD. DV totally recovered in 4th month; palsy started to recover slowly around month 7. Had twin boys 13 months after surgery. Doing great.