Author Topic: I did it too!  (Read 6852 times)

4cm in Pacific Northwest

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Re: I did it too!
« Reply #15 on: October 22, 2008, 08:52:15 pm »
Eye Eye captain,

Most proud of yer! Way ya be!

DHM (4)
4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

ppearl214

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Re: I did it too!
« Reply #16 on: October 23, 2008, 06:05:08 am »
Capt'n, you know just how proud I am of you? I know it was, post hike, an Imitrex moment, but getting to that moment was thrilling to hear you accomplished! Great job Captn!!!!!

xoxoxoxoxo
Your cursed cruise director, the cheeky bloke and the "toot" queen!  :-*
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Kaybo

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Re: I did it too!
« Reply #17 on: October 23, 2008, 07:46:18 am »
Capt Deb~

WHOO-HOO!!  I thought that I posted on this yesterday but muct have run out the door to Figure Skating (for Emee NOT me!!  LOL!) before I hit post!! 

Were you hiking alone??????   :o

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Debbi

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Re: I did it too!
« Reply #18 on: October 23, 2008, 07:51:23 am »
Capt Deb-

You are one awesome woman!!  Keep on climing those mountains...

Debbi, enjoying the fall colors in NJ
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Captain Deb

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Re: I did it too!
« Reply #19 on: October 23, 2008, 09:47:06 am »
Yes I went climbing alone--I figured my own pace was the best for my head so as not to be rushed. I snailed my way up--leaving at 10 AM and hit the spring at 3 and was back at the car at 5 :30.  Quite the snails pace.  Lots of folks passed me on the way up and down!!!

Capt Deb
"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

Jim Scott

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Re: I did it too!
« Reply #20 on: October 23, 2008, 04:40:04 pm »
Yes I went climbing alone--I figured my own pace was the best for my head so as not to be rushed. I snailed my way up--leaving at 10 AM and hit the spring at 3 and was back at the car at 5 :30.  Quite the snails pace.  Lots of folks passed me on the way up and down!!!

Capt Deb

Deb:

I'm in pretty good shape and recovered well but doing what you did would be a serious challenge for me.  I salute your determination, stamina and spirit.  :)

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Larry

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Re: I did it too!
« Reply #21 on: October 23, 2008, 06:37:29 pm »
The title of this post intrigued me (there's too much testosterone downunder) and seeing the author, I put one and one together and... - well, ya could have knocked me over with a feather duster when i read the post.

Well done young Deb - you got more chutzpa than a lot of people to try that one. Shame ya suffered the consequences of the headache but what you achieved was amazing.


Laz
2.0cm AN removed Nov 2002.
Dr Chang St Vincents, Sydney
Australia. Regrowth discovered
Nov 2005. Watch and wait until 2010 when I had radiotherapy. 20% shrinkage and no change since - You beauty
Chronologer of the PBW
http://www.frappr.com/laz

wendysig

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Re: I did it too!
« Reply #22 on: October 25, 2008, 04:21:21 am »
Wow Capt. Deb very impressive!!  I've been proud of the hills I've conquered and they don't even compare -- congrats on this amazing feat!

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Soundy

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Re: I did it too!
« Reply #23 on: October 26, 2008, 04:56:27 pm »
Congratulations ... makes me feel like a wuss for letting our hills on the farm conquer me ...

3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery

NL

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Re: I did it too!
« Reply #24 on: November 19, 2008, 03:16:04 pm »
Capt Deb,

I'm glad Cheri found this thread so I can also say congratulations on this great accomplishment! And what a beautiful place to hike! We don't see all those vivid fall colors in my neck of the woods!

I'm sorry it brought on the headache, but I appreciate the heads up. I'll be sure to bring my Imitrex along when I try hiking again next summer.  :)

Thanks for sharing the pics!

Nancy

1.6 cm left AN diagnosed Oct. '07
1.9 cm on 2nd MRI, May '08
Retrosigmoid surgery at House Clinic/St. Vincent's on 8/6/08
(no post-op dizziness, nausea, facial or balance issues)
Thankful for a fantastic team of doctors - Dr. Rick Friedman, Dr. Marc Schwartz, & Dr. Michael Stefan

Laura

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Re: I did it too!
« Reply #25 on: November 22, 2008, 05:15:28 pm »
Rock on Capt Deb!!! With that hike you must have dropped yet another pant size! I'm in Virginia and right off the Blue Ridge Park Way as well... BEAUTIFUL.... God's country!
Diagnosed August 17, 2006
AN on right side 1cm x 7mm x 7mm
30% hearing loss with no other symptoms
Watching and Waiting
http://www.patient-network.com/lparr
It's mind over "matter"... even if the "matter" is in my mind

Captain Deb

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Re: I did it too!
« Reply #26 on: November 23, 2008, 11:59:42 am »
Rock on Capt Deb!!! With that hike you must have dropped yet another pant size! I'm in Virginia and right off the Blue Ridge Park Way as well... BEAUTIFUL.... God's country!

Does that mean that I could get on the parkway, which is practically in my backyard, drive North for a long time, and get off eventually and be in your backyard? Cool!

Capt Deb
"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

Laura

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Re: I did it too!
« Reply #27 on: November 23, 2008, 07:58:21 pm »
Yep, pretty much! Come on up, I just stocked up on Tim Tams!
Diagnosed August 17, 2006
AN on right side 1cm x 7mm x 7mm
30% hearing loss with no other symptoms
Watching and Waiting
http://www.patient-network.com/lparr
It's mind over "matter"... even if the "matter" is in my mind