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Author Topic: 23 Month check up!!! All smiles!!  (Read 2685 times)

epifania74

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23 Month check up!!! All smiles!!
« on: January 14, 2009, 10:56:46 pm »
Gidday ANers!!!

This morning had my yearly checkup with the specialist/neurosurgeon.  My MRI was done in early Dec of 2008, with the report saying that the mass had enlarged slightly...I have been a nervous wreck since Dec..thinking oh great another round of radiation..uurrgghh..Saw the specialist today and he was quite pleased with the result. With radiation the cells swell because of the injury pertained which would explain the slight enlargement..So my heart beats and skips joyfully..next year the remaining tumour should either stay the same or shrink. The tumour should be dead, and wont disappear so I'll always have a mass.

I have not seen my specialist since the beginning of last year..and he was quite astounded at the improvement in my face..Hey I can't do a smile but at resting tone my face looks symmetrical..its only when I speak..Fingers crossed that I have more improvement..Confirmation the tumour was 6cm, I thought it was 5.8 or something..oh well I am my specialists biggest tumour he has ever seen, not a record I myself would be proud to flaunt..His discription when he first saw my MRI back in 2007 was the size of a fist..I should now be dead..but oh no.. I'm here annoying you guys..he..he...

I am all smiles although crooked,  :D :D :D :D Happy with the results!! So people out there don't give up..hey the dr didn't expect any improvement from last year, but it came maybe late.. but it still came. It is a long road to recovery. Waiting is the killer..just waiting but trust me, give it time let your nerves grow regenerate, it won't happen over night though I wish it would, but it will happen!!!

Take care all you ANers thought I would share my good news with you.. :) :) :) :) :) :)
« Last Edit: January 14, 2009, 11:04:46 pm by epifania74 »
Logged
Tumour size 6 cm.  Operated Feb 2007
Central permanent Tarsorrhaphy  x2 performed Feb 2007 and May 2007
Radiation March 2008
Right facial palsy and total loss of hearing in right ear.

wcrimi

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Re: 23 Month check up!!! All smiles!!
« Reply #1 on: January 15, 2009, 12:23:15 pm »
Great news!   ;D
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1 cm, 6mm, 4mm on Left side. Surgery performed 11/6/2008 by Dr. Kalmon Post and Eric Smouha at Mt. Sinai Hospital in NYC.
Normal hearing before, 85%-90% now, dizziness when walking or turning head, annoying hissing and high pitched tinnitus on and off, eyes have trouble adjusting to rapid head move

lori67

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Re: 23 Month check up!!! All smiles!!
« Reply #2 on: January 15, 2009, 12:26:58 pm »
That is really great news!

Please feel free to stick around and "annoy" us for many years to come!!   ;D

You sound like you are really doing great and have such a good outlook!

Lets try not to set any more records with the surgeons - okay!   :D

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Jim Scott

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Re: 23 Month check up!!! All smiles!!
« Reply #3 on: January 15, 2009, 04:02:44 pm »
Epifania:

Congratulations on your great MRI news and the wonderful progress in your recovery!  Your sunny attitude has lit up our faces as we share your obvious joy.  :D

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

wendysig

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Re: 23 Month check up!!! All smiles!!
« Reply #4 on: January 17, 2009, 08:17:19 pm »
Congratulations!  Do stick around and keep updated -- we enjoy hearing good news!

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

MAlegant

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Re: 23 Month check up!!! All smiles!!
« Reply #5 on: January 19, 2009, 10:44:13 am »
Awesome news!  And thanks for sharing--it gives hope to others.
Best,
Marci
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.
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