Author Topic: Dry Eye - Pre- Ops  (Read 5311 times)

Seal

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Dry Eye - Pre- Ops
« on: January 24, 2009, 09:05:03 pm »
Hi all,

I am wandering throught the maze of appointments etc before deciding on a doctor and final procedure.     However, I find my symptoms getting progressively worse.    The numbness in the right side of my face is now complete, and I am beginning to see the signs of the loss of control on that sides due to the pressure on the nerve.   My latest observation is the inability to create tears in that right eye.     I have no feeling in the eye, and one doctor tested the reflex by touching it with a dry tissue which gave no reaction.        As far as I know or can tell, I don't seem to be creating tears in that eye now either.       I must admit to an emotional moment today which gave me tears on the left side but no detectable tears on the right or AN  side.     So is this typical of the general loss of feeling on the face or does this fore tell more serious deterioration of the main nerve to the face?       And does this come back after the operation?

Finally, any suggestions on eye drops to help lubricate the eye for the time being?

Thanks,
Steve
Diagnosed 1/14/09 - 2.4cm AN right side --- about 70% cycstic
Retrosigmoid wiih McKenna & Barker - total removal successful on April 13th. 
Issues: balance, facial & mouth numbness, hearing loss right side
Results:   numbness gone, balance is good, SSD right side. Great results.

Kaybo

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Re: Dry Eye - Pre- Ops
« Reply #1 on: January 24, 2009, 10:16:12 pm »
Steve~
Get some drops in that eye so if you do get that back, your eye will be OK.  I don't think that anyone could truly say whether or not that will come back (sorry, I like to hope for the best and be prepared for the worst - I'm a realist).  I use Systane during the day and Refresh PM at night.  Before I had my weight put in, I used Refresh PM 24/7.  It is a salve and so it distorts the vision in that eye.  I know many others use the Refresh drops during the day - I just get free Systane at the eye Dr.!  I doubt you need the salve right now, but I would take drops/salve to the hospital with you just in case they don't know how to take care of your eye right whenever you go!  Certainly use the ones and let your insurance pay for while you are there - they aren't cheap when you are using a lot, but better to be prepared than have more trouble b/c you need it & can't get it quick enough!

K   ;D
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

tony

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Re: Dry Eye - Pre- Ops
« Reply #2 on: January 25, 2009, 06:10:35 am »
With the eye stuff there is fundamentally two types
One for day - there are many brands etc
One for night - this is more like a petrolieum jelly
Most makes are thick and contain substances
to reduce the chance of infection in the eye
- so they lubricate and protect
Actually the nightimes are potentially the most
dangerous - since you might sleep with the
eye part open - and not know till later
Any doubt here - see a specialist
Best Regards
Tony

Cheryl R

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Re: Dry Eye - Pre- Ops
« Reply #3 on: January 25, 2009, 11:54:41 am »
My frequent post has always been my favorite Refresh Liquigel eye drops.   They are thicker than the tears type so work better.           The gel for night time use.      if the eye does shut on its own than one can just use the gel that way with not having. to tape or bandage it somehow closed.                      It does take some experiementing for some people as to which brand works best with all of this.           Good luck with the eye.                          Cheryl R         
                                                 
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

mimoore

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Re: Dry Eye - Pre- Ops
« Reply #4 on: January 25, 2009, 04:06:40 pm »
REFRESH Celluvsic - comes in little individual vials. Twist the top off and push it back on - nifty little things. Don't use drops with preservatives. Check out my post on eyewear...my eye is healthy. I use lacilube and tape and bandage my eye closed at night.
http://anausa.org/forum/index.php?topic=7688.0
I also wear swimming goggles in the shower.
I too had lost sensation in my eye ball and my face (5th cranial nerve), the lack of tears is from the 7th cranial nerve. Lets hope that when they remove your tumour that all returns fine. I did get most of my feeling back except around and in my nostril and a small area on the roof of my mouth. The sensation is not 100% on my eye ball but pretty close. I suffered facial paralysis after surgery and lost the ability to tear and it is slowly recovering.
Be optimistic!
 M ;D
Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

mk

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Re: Dry Eye - Pre- Ops
« Reply #5 on: January 25, 2009, 07:32:51 pm »
There are two reasons that cause dry eye, and they are unrelated. The first is due to facial nerve damage, that many people here are experiencing. This causes inability for tear formation, which becomes even worse from the fact that the eye doesn't close.

The second reason is because of the 5th-trigeminal nerve damage, which is what you have from the symptoms you are describing. This causes lack of sensation to the cornea (as well of course to the rest of the face). Therefore the eye cannot "feel" when there is a lack of moisture, and is not sending the appropriate signal for tear production. the eye ends up beeing completely dry, and then you really start feeling it. If lack of corneal sensation is the cause, there is still tear production, just less. Therefore, you don't need to tape the eye, put eye drops too often etc - just a regimen of care with eye drops a few times a day is sufficient.

I didn't figure what was causing my eyes to be dry, until both eyes were really red and irritated (because the "good" eye tries to compensate for the lack of tear production from the AN eye). Following the excellent suggestions from the Cyberknife forum, as well as my optometrist, I experimented with several types of eye drops.  As Michelle mentioned, my favorite ones are the Refresh Celluvisc - I use them twice a day, morning and night. And in-between, once a day I use the Genteal eye drops.  My optometrist suggested that I can use drops as frequently as every 2 hours, if they are needed to keep the eye moist.

The problem of dry eye caused by the trigeminal nerve is annoying, but can be dealt with easily when following the proper care. Problems due to facial nerve damage are more challenging, and there is tons of information about this in this forum.

Marianna

GK on April 23rd 2008 for 2.9 cm AN at Toronto Western Hospital. Subsequent MRIs showed darkening initially, then growth. Retrosigmoid surgery on April 26th, 2011 with Drs. Akagami and Westerberg at Vancouver General Hospital. Graduallly lost hearing after GK and now SSD but no other issues.

Seal

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Re: Dry Eye - Pre- Ops
« Reply #6 on: January 26, 2009, 11:16:32 am »
Marianna,

You hit the nail on the head.    I can close my eyes voluntarily, and they are staying closed at night.   So your second explanation makes sense.      Thank you all for the referal as well on the Refresh product.   My wife actually had some left over from her eye laser surgury, and they seem to be doing the trick for now.     I hope you are right and that this numbness is temporary.   Of course, this all assumes that the operation will not damage the facial nerve further and cause more numbness and/or paralysis.     I wanted to go out yesterday for a long jog/walk or something.  However, the cold was way too much for the dry eye, and just a few minutes out in the 24 degree weather was enough for me.    Funny how you take these things for granted until you have to deal without things as simple as tears to protect your eyes! 

Thanks for all the feedback.    This helps alot and keeps me from freaking out too much.    These symptoms are just coming at me a little bit too fast and furious.       

Best,
Steve
Diagnosed 1/14/09 - 2.4cm AN right side --- about 70% cycstic
Retrosigmoid wiih McKenna & Barker - total removal successful on April 13th. 
Issues: balance, facial & mouth numbness, hearing loss right side
Results:   numbness gone, balance is good, SSD right side. Great results.