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Author Topic: This Week (3/1) in the Discombobulating AN World  (Read 4642 times)

wendysig

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Re: This Week (3/1) in the Discombobulating AN World
« Reply #15 on: March 02, 2009, 06:49:16 pm »
Good luck to all having surgery this week.

Happy Birthday to Sue and K -  hope they are both wonderful!

Jan -- Happy First BAHA Anniversay!  I can't bellieve a year has gone by already.  I hope it just keeps getting better.  And I don't blame you for wanting to be able to turn a deaf ear (pun intended) to all those money requests.  Having a teenager and a tween (soon to be teen) I know what you mean!

Wendy

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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

LADavid

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Re: This Week (3/1) in the Discombobulating AN World
« Reply #16 on: March 03, 2009, 10:24:28 pm »
Just got an update from Joseph, Beth's husband.  Beth is the 24 year old who is had her 4th surgery in the past two years today. It took them awhile to get the tumor because of all the scar tissue, but they got it.  And she had an ABI implanted.  Into surgery at 10:30, out at 6:30, and now in ICU.
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Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
http://my.calendars.net/AN_Treatments

sgerrard

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Re: This Week (3/1) in the Discombobulating AN World
« Reply #17 on: March 03, 2009, 10:35:13 pm »
Best wishes to Beth. Gotta hand it to her, having a 4th surgery at 24 is no small feat. Very discombobulating, I would guess. I hope the ABI takes. Let her know that we are rooting for her.

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Captain Deb

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Re: This Week (3/1) in the Discombobulating AN World
« Reply #18 on: March 04, 2009, 08:50:24 am »
Hopeful healing thoughts go out to Beth and Ernie for good surgical outcomes and hope you are home and healthy soon. Happy birthday Kaybo and to Sue, our indespensable Princess Batty Wench Ships Poet Lorry Ate Sue Wench--You just got it back a$$ward!!
-
I think yer in a fix
 Yer only 36!!
It must be all the strain
That's gettin' to yer brain!
Happy Birthday !!!

Capt Deb P-)
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"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

Pooter

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Re: This Week (3/1) in the Discombobulating AN World
« Reply #19 on: March 04, 2009, 03:11:22 pm »
Forgive my ignorance, but I'm learning new things all the time.. What's an ABI?  What's it for?  Etc..

Back to your regularly scheduled discombobulatingness,
Brian  :)
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

NL

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Re: This Week (3/1) in the Discombobulating AN World
« Reply #20 on: March 04, 2009, 03:29:37 pm »
Sending lots of healing thoughts to those having surgeries this week, and tons of good wishes to those celebrating birthdays and anniversaries!

Brian - the ABI that Beth is having implanted is an Auditory Brainstem Implant. It was designed primarily for NF2 patients who would not be candidates for the Cochlear Implant since their auditory nerve can't carry signals from the cochlea. The ABI sends an electrical signal to the auditory section of the brainstem. Very high tech, but not always 100% guarantee it will work.

This is Beth's second surgery to try the ABI, and they won't know if it is successful for another month. Please send lots of positive thoughts that this part of her surgery is also a success!

Nancy
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1.6 cm left AN diagnosed Oct. '07
1.9 cm on 2nd MRI, May '08
Retrosigmoid surgery at House Clinic/St. Vincent's on 8/6/08
(no post-op dizziness, nausea, facial or balance issues)
Thankful for a fantastic team of doctors - Dr. Rick Friedman, Dr. Marc Schwartz, & Dr. Michael Stefan

Pooter

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Re: This Week (3/1) in the Discombobulating AN World
« Reply #21 on: March 04, 2009, 04:27:31 pm »
Cool!  Learn something new every day!  Thanks for explaining it to me, Nancy.  Medical science just astounds me with what they can do..fascinating.

Regards,
Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

leapyrtwins

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Re: This Week (3/1) in the Discombobulating AN World
« Reply #22 on: March 05, 2009, 11:20:22 pm »
David -

thanks for the update on Beth.  I hope everything goes well for her and that the ABI works this time.

I believe Jeff has an ABI and it sounds very interesting; very high tech.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways
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