I am 4 years out from CK and experience headaches.....intense frequently.....have tried soooooo many remedies. I have now been referred to a pain clinic for pain management......not sure about this but going to try it....who knows? I am on Vicodin three times per day on bad days.....others get by on 1/2 am & pm......nevertheless it is almost everpresent, like the imbalance. I am 69, a widow, live alone......don't care If I get addicted......I need and want to do stuff.....however I can get to that place. I want a quality of life not quantity. I want to plant for Spring in the garden, paint in my studio, play my piano, cook great food, laugh with my grandchildren, dance with my sons, watch good movies, read good books and so much more........If it takes meds to get me there......it's fine with me! I feel deeply for those who suffer this malady and daily HOPE for answers......especially for the young people that come to this site for them. It is the most comfort that I can find......it is a VERY special place to come to when all else fails......you are all here.........GOD BLESS each and every one of you that posts and/or read the loving sharing and honesty that transpires and inspires to keep on .........keeping on!
Judy