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Author Topic: Skull Base Institute Consultation  (Read 9937 times)

jerseygirl

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Re: Skull Base Institute Consultation
« Reply #15 on: May 08, 2009, 05:28:46 pm »
Molly,

Traditional retrosigmoid surgery is what causes a lot of brain manipulation to get access to the tumor and "gain perspective". That is why translab is considered gentler because there is a lot less manipulation during surgery. Dr. Sh does restrosigmoid but minimum brain manipulation because it is endoscopic. I just don't want to mislead you: this is also brain surgery, don't let anybody call it anything else. Every surgery has risks and potential side effects. None of it is good or pleasant. There is always something. I am not sure what long-term side effects the people you spoke to have but brain manipulation has potential cognitive side effects. It is something to think about.

              Eve
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Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

Tumbleweed

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Re: Skull Base Institute Consultation
« Reply #16 on: May 12, 2009, 01:09:04 am »
I just want to thank everyone who has participated in this topic, especially those who have had endoscopic surgery at SBI, but also those who are just sharing their research findings. This is a fascinating topic, and your knowledge, experiences, and opinions are of great help to everyone.

Best wishes,
TW
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08
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