Hi Jan,
I think both the issues are very fair and I noticed both of them myself. I cringed when I heard the reporter refer to patient receiving "cancer" treatments when they were placing the patient on the table. As far as the "drama" of the 911 call, I guess you have to take it at face value as what occurred with that patient and I've certainly heard where some folks have some extreme symptoms even with very small tumors. Clearly that is an extremely rare occurrence and it is unfortunate that it left a wrong impression of ANs for the viewer.
That being said, I look at the clip with with the following filters
1) Like most TV news stories, it was probably limited to 2-3 minutes and you just can't explain a lot in that window of time
2) I don't have a favorable opinion of the quality of the people in journalism and media in general today, so I don't have high expectations on their ability to objectively and rigorously research facts
3) The CK was the focus of the segment, not AN's, so I'm not surprised there wasn't a lot of effort to understand and describe the condition itself
So, while I agree with your observations 100%, I guess I give the clip a little slack given it's limitations. Even the couple of sound bites from the doctors were fairly vanilla and I'm sure inadequate for anyone with an AN who was still trying to understand the treatment options. I think it's primary value was to give a visual of both how CK treatment is done and Dr. Chang and Stanford who are mentioned often mentioned on this forum. Beyond that I guess it's just curious to see both AN and CK get some publicity
Mark