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Author Topic: Status after 2 yrs from stereostatic radio surgery via Novalis  (Read 3192 times)

crystallady

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Status after 2 yrs from stereostatic radio surgery via Novalis
« on: March 26, 2009, 04:02:11 pm »
  ;D  Hi everyone, its been 2 years since I had the one treatment from the novalis machine.  My AN is slowly dieing and schrinking!!  I feel great and still have 100% hearing.  I still have balance challenges but they are minor.  I feel great and want to let you know that is a wonderful alternative to multiple treatments from other machines. 
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sgerrard

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Re: Status after 2 yrs from stereostatic radio surgery via Novalis
« Reply #1 on: March 26, 2009, 08:24:29 pm »
Always happy to hear about successful radiation treatment. Congratulations on two years!

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Nicole12

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Re: Status after 2 yrs from stereostatic radio surgery via Novalis
« Reply #2 on: April 09, 2009, 02:50:49 pm »
What's Novalis.  Where did you have the treatment. How big was your AN.
Thanks,
Nicole
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9mm x 3mm AN diagnosed 1/16/09
Watch and wait

Jim Scott

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Re: Status after 2 yrs from stereostatic radio surgery via Novalis
« Reply #3 on: April 09, 2009, 03:38:14 pm »
Cindy ~

Congratulations!  I'm so pleased to learn of your success.  Thanks for sharing it with us.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Jim Scott

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Re: Status after 2 yrs from stereostatic radio surgery via Novalis
« Reply #4 on: April 09, 2009, 03:47:14 pm »
Quote from: Nicole12 on April 09, 2009, 02:50:49 pm
What's Novalis.  Where did you have the treatment.?  How big was your AN?

Nicole ~

Novalis is a 'shaped beam' radiation process that precisely targets the tumor and avoids damaging most of the surrounding tissue.   Cindy had her treatment at Strong Memorial Hospital in Rochester, NY.   Cindy's AN was approximately 2 cm. 

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Tumbleweed

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Re: Status after 2 yrs from stereostatic radio surgery via Novalis
« Reply #5 on: April 11, 2009, 09:28:18 pm »
Never thought I'd hear myself say this, but RADIATION RAWKS!  :)

Congrats, Cindy, and thanks for the update.

Best wishes,
TW
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

tatianne

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Re: Status after 2 yrs from stereostatic radio surgery via Novalis
« Reply #6 on: May 11, 2009, 07:07:53 am »
Love to hear this kinda news, maybe it continue to disappear ! Congrats babe !
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Waith and Watcher
July 2006 8mm
Jan 2007 9.5 mm
Jan 2009 1.4 cmm x 5mm
GK surgery completed on May 4, 2009 in Sherbrook Quebec, hoping and praying this will be the beginning of the end of my AN......

Richard in Palacios

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Re: Status after 2 yrs from stereostatic radio surgery via Novalis
« Reply #7 on: May 18, 2009, 02:30:16 pm »
What great news.  Thanks for sharing.  I am coming up on my 1 year follow up MRI and can only hope I get as good a reading as you have.  I was also trerated by the SRS via Novalis.  Like you, I am a firm believer that it was the best option for me.  The more I learn, the more convinced I become.  I'll put out an update in mid June when I have my report back. 
Richard
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Was AKA "RED in Palacios". That account now inactive. Originally diagnosed in 10/06 9mm X 3.6mm Waiting and watching.
As of 4/08 15mm X 6mm.  No longer waiting and watching.  Had SRS 6/10/08 at Methodist Hospital in Houston
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